Dr. K patients-what’s the plan?

Please feel free to read, share your thoughts, your stories and connect with others!
kandj
Posts: 314
Joined: Sun Sep 27, 2015 11:29 am

Dr. K patients-what’s the plan?

Postby kandj » Thu May 28, 2020 6:18 pm

Just curious what all of you Dr. K patients are hearing about your appointments and scans. We just heard they may not be in clinic by mid June which is DH’s rescheduled appt time. He last saw her March 3rd. He’s almost 3 months post lung resection and adrenal ablation. He got orders to get local scans and then send them to MSK. But they also haven’t cancelled those mid June appts. Gonna call tomorrow but wanted to see what everyone else was hearing.
wife to DH, dx 8/15 stage IV @36, 12+ liver Mets
HAI placed 12/15
Liver resect 5/19/2016 15-20 mets (surgeon lost count)
Liver Recurrence 7/2017-radiation
Lung met 10/18 VATS
lung/adrenal gland recurrence 11/19
Adrenal ablation 2/20 VATS 3/20
Radiation: 9/20 adrenal gland, 2/21 pancreatic node
9/2021 liver, 4/22 esophageal node
7/2023 proton therapy: liver
140+ rounds of chemo and counting
Chest nodes, lung nodules, and esophageal nodes currently.

User avatar
ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

Re: Dr. K patients-what’s the plan?

Postby ginabeewell » Thu May 28, 2020 7:53 pm

Last week they called to ask me to book my scans locally and then have a telemedicine conference with Dr K. I’m in active chemo treatment right now, and I wish I felt better about the coordination between MSK and my local center, Northwestern. I think things will be ok, but I will feel a lot better once Dr K is back on the scene!
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

Join me on a lookback of my journey via my Strive for Five on Substack here:
https://ginajacobson.substack.com

All treatment details here:
https://www.weareallmadeofstars.net/col ... nt-journey

My favorite posts here:
https://weareallmadeofstars.net/favorite-posts

kandj
Posts: 314
Joined: Sun Sep 27, 2015 11:29 am

Re: Dr. K patients-what’s the plan?

Postby kandj » Sat May 30, 2020 5:12 pm

ginabeewell wrote:Last week they called to ask me to book my scans locally and then have a telemedicine conference with Dr K. I’m in active chemo treatment right now, and I wish I felt better about the coordination between MSK and my local center, Northwestern. I think things will be ok, but I will feel a lot better once Dr K is back on the scene!



That’s the plan for DH too. Not sure I have the most faith in the local scan part. They missed his lung met and adrenal met last time. Hoping we can get back to NYC in August.
wife to DH, dx 8/15 stage IV @36, 12+ liver Mets
HAI placed 12/15
Liver resect 5/19/2016 15-20 mets (surgeon lost count)
Liver Recurrence 7/2017-radiation
Lung met 10/18 VATS
lung/adrenal gland recurrence 11/19
Adrenal ablation 2/20 VATS 3/20
Radiation: 9/20 adrenal gland, 2/21 pancreatic node
9/2021 liver, 4/22 esophageal node
7/2023 proton therapy: liver
140+ rounds of chemo and counting
Chest nodes, lung nodules, and esophageal nodes currently.

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: Dr. K patients-what’s the plan?

Postby mariane » Mon Jun 01, 2020 10:59 am

I am so grateful for this thread, Kathleen! Greetings for Joe!

My scans got rescheduled from April to June 21/22. I had last scans in November... So weird...

Additionally, my husband got furloughed and only God knows, how long we will keep the insurance, and when he gets another job with decent benefits. Is it safe to even go to NY?...

Please, keep me posting what's going on. I appreciate it.
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

kandj
Posts: 314
Joined: Sun Sep 27, 2015 11:29 am

Re: Dr. K patients-what’s the plan?

Postby kandj » Wed Jun 17, 2020 10:59 pm

mariane wrote:I am so grateful for this thread, Kathleen! Greetings for Joe!

My scans got rescheduled from April to June 21/22. I had last scans in November... So weird...

Additionally, my husband got furloughed and only God knows, how long we will keep the insurance, and when he gets another job with decent benefits. Is it safe to even go to NY?...

Please, keep me posting what's going on. I appreciate it.


I am so sorry about your husbands job! This is just one more worry, isn't it? I heard DR. K is out the 18th-30th. So DH is having his telemedicine the 30th. His scans were last week and i guess they look ok. Honestly, they missed stuff here locally last time so I will feel better when the MSKCC radiologists give the thumbs up. I mean, he had his adrenal met ablated and they didn't even mention that on either report. :roll:
wife to DH, dx 8/15 stage IV @36, 12+ liver Mets
HAI placed 12/15
Liver resect 5/19/2016 15-20 mets (surgeon lost count)
Liver Recurrence 7/2017-radiation
Lung met 10/18 VATS
lung/adrenal gland recurrence 11/19
Adrenal ablation 2/20 VATS 3/20
Radiation: 9/20 adrenal gland, 2/21 pancreatic node
9/2021 liver, 4/22 esophageal node
7/2023 proton therapy: liver
140+ rounds of chemo and counting
Chest nodes, lung nodules, and esophageal nodes currently.


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 59 guests