DH is back in the hospital :(

Please feel free to read, share your thoughts, your stories and connect with others!
jep
Posts: 250
Joined: Sun Jun 11, 2017 7:45 pm
Location: New England, USA

Re: DH is back in the hospital :(

Postby jep » Fri Jun 05, 2020 7:24 pm

Hi!! Yes, he finally came home on Wednesday :)
All tests on the heart were good, and he is doing IV antibiotics at home through his PICC....much easier than TPN, that’s for sure! He even went for his chemo (modified) on Thursday....we’re doing an all liquid diet for now because he’s nervous about this partial blockage....I’m making him high calorie, high protein smoothies and other good stuff.....so good to have him home!!
No more Avastin for now (in case of surgery), but what can you do??
Hoping to see a lower CEA and some shrinkage soon!!
Thanks <3
jep
Wife of DH (47) Stage IV CC 5/16/17
T Loc: recto-sig
T type: Adenocarcinoma
T size: 7.4 cm
T grade: G3
TNM code: T3N2M1
Pos LNs: 8/20
BL CEA: .9
LVI: present
Perineural invasion: present
LAR margins: clear (w/in microns)
Folfox (8/17-1/18)
Scope 6/18 - CLEAR! - 2 polyps
PET 10/17/18: 3 pos LNs
Irino + Vecti (started in 11/18)
CEA: 1.7 (2/19)
Xel + rad (5/19)
Surgery: 8/21/19 (aborted)
P1 Trial 10/19 - 12/19
Bypass 12/6/19
Folfox + vecti 1/2/19 - 4/3/20
Kid Fail 5/1/20
Folfiri + Avastin 5/4/20 -

DarknessEmbraced
Posts: 3466
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: DH is back in the hospital :(

Postby DarknessEmbraced » Sat Jun 06, 2020 10:22 am

I'm glad he's home and I hope he feels better soon!*hugs* I hope his chemo goes well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Claudine
Posts: 386
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: DH is back in the hospital :(

Postby Claudine » Sat Jun 06, 2020 12:27 pm

Great news! Enjoy pampering him and exploring yummy smoothies recipes :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 4.4
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: one 1mm stable nodule
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and residual tumor removal 05/20

boxhill
Posts: 555
Joined: Fri Apr 06, 2018 11:40 am

Re: DH is back in the hospital :(

Postby boxhill » Sat Jun 06, 2020 1:41 pm

Glad he's home and on the mend. :)
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 CT NED
11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Suspend treatment

jep
Posts: 250
Joined: Sun Jun 11, 2017 7:45 pm
Location: New England, USA

Re: DH is back in the hospital :(

Postby jep » Fri Jun 26, 2020 10:34 am

So it's been only 23 days since my husband was released from the hospital and he's back in with another blockage :( The doctors have given him a few choices at this point:

1. another bypass (chemo delayed for at least a month)

2. a release valve that will allow him to drain in the event of a blockage (and continued TPN and continued chemo)

3. keep going the way he's been going (which doesn't really seem like much of an option)

Does anyone have experience with a second bypass surgery OR with this concept of a release valve to drain blockages??

Thank you!!
jep
Wife of DH (47) Stage IV CC 5/16/17
T Loc: recto-sig
T type: Adenocarcinoma
T size: 7.4 cm
T grade: G3
TNM code: T3N2M1
Pos LNs: 8/20
BL CEA: .9
LVI: present
Perineural invasion: present
LAR margins: clear (w/in microns)
Folfox (8/17-1/18)
Scope 6/18 - CLEAR! - 2 polyps
PET 10/17/18: 3 pos LNs
Irino + Vecti (started in 11/18)
CEA: 1.7 (2/19)
Xel + rad (5/19)
Surgery: 8/21/19 (aborted)
P1 Trial 10/19 - 12/19
Bypass 12/6/19
Folfox + vecti 1/2/19 - 4/3/20
Kid Fail 5/1/20
Folfiri + Avastin 5/4/20 -

AmyG
Posts: 338
Joined: Tue Dec 25, 2018 8:08 pm

Re: DH is back in the hospital :(

Postby AmyG » Sun Jun 28, 2020 10:41 am

I have zero experience with any of those choices, but it seems like #2 would be the way to go? I am imagining that thing that they put in cows for bloat....

Hope things get better for yall soon!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

DarknessEmbraced
Posts: 3466
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: DH is back in the hospital :(

Postby DarknessEmbraced » Sun Jun 28, 2020 10:44 am

I'm so very sorry your husband is back in the hospital!*hugs* I hope whichever option is chosen that it helps him.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

NHMike
Posts: 2436
Joined: Fri Jul 21, 2017 3:43 am

Re: DH is back in the hospital :(

Postby NHMike » Fri Jul 10, 2020 8:08 pm

I have small bowel obstructions from time to time due to scar tissue from surgery. Sometimes things are slow in the large intestine too. I've found that taking Slippery Elm and Nopalina daily improves flow. Some people take these two along with a dose of Miralax in the morning to keep things moving.

Waling or running may shake things up. Having strong abs may make it easier to push things out.

Eat more small meals instead of fewer large meals.

Potatoes and Sweet Potatoes will slow things down and he may not want to do that.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: csfl and 7 guests