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Celebrating 10 years since my Stage IV DX!!!!!

Posted: Sun May 24, 2020 11:16 am
by Mattie
Hi all, JUST SO HAPPY With these results!!!!



CT SCAN OF THE CHEST, ABDOMEN AND PELVIS with IV contrast 5/14/2020
9:10 AM

HISTORY: Colon cancer, follow-up

TECHNIQUE: CT examination of the chest, abdomen, and pelvis was
performed following the intravenous administration of 125 mL
Isovue-370. Sagittal, coronal and 3-D reformatted images were
provided. CT dose lowering techniques were used, to include:
automated exposure control, adjustment for patient size, and or use of
iterative reconstruction.

COMPARISON: December 23, 2019

FINDINGS:
Chest:
Pulmonary Parenchyma and Airways: 3 mm nodule peripheral left lower
lobe (series 5 image 201), unchanged. No new pulmonary nodule. Lungs
otherwise clear. The trachea and airways are normal.

Pleural and Pericardial Spaces: No pleural or pericardial effusion.
No obvious pleural or pericardial mass.

Mediastinum and Hila: Simple cyst adjacent to the right atrium (series
2 image 63) measures 1.8 x 4.2 cm, unchanged; Hounsfield density is 6,
consistent with water density. This is consistent with a benign
pericardial cyst, stable..

Chest wall and axilla: No mass or adenopathy.

Cardiovascular: No evidence of aortic aneurysm or aortic dissection.
The heart size is normal. The pulmonary artery is normal in size.

Abdomen:
Liver: 5 mm hypodensity right lobe of liver (series 2 image 99), 2
small to characterize but unchanged. Unchanged resection posterior
right lobe with no recurrent lesion. No new liver lesion. No
intrahepatic or extrahepatic biliary ductal dilatation.

Gallbladder: Numerous small dependent gallstones unchanged. No
gallbladder inflammation.

Pancreas: Normal. No ductal dilatation.

Spleen: Normal.

Kidneys: No hydronephrosis, mass, or stone.

Adrenals: Normal.

Stomach and Small Bowel: No bowel wall thickening or dilatation.

Appendix, Colon, and Rectum: Appendectomy. Rectosigmoid anastomosis
intact. Previously appreciated wall thickening at the anastomosis is
no longer present.

Peritoneum/Mesentery: Unremarkable.

Retroperitoneum: No mass or adenopathy.

Abdominal Wall: Left periumbilical hernia contains a single loop of
nondilated small bowel, unchanged.

IVC and Aorta: No aneurysm.

Ascites: None.

Free Air: None .

Pelvis:
Urinary Bladder: Normal.

Reproductive Organs: Hysterectomy. No adnexal mass.

Nodes: No adenopathy.

Bones: No fracture or aggressive osseous lesion.

IMPRESSION:
1. Stable exam. There is no evidence of metastatic or recurrent
disease.

Re: Celebrating 10 years since my Stage IV DX!!!!!

Posted: Sun May 24, 2020 3:35 pm
by boxhill
Yay! Many happy returns of the day!

Re: Celebrating 10 years since my Stage IV DX!!!!!

Posted: Sun May 24, 2020 3:41 pm
by lovelife789
Wow your story is amazing!gives lots of us hope :D
May I know what nodes did you have mets?

Thanks in advance for sharing :P

Re: Celebrating 10 years since my Stage IV DX!!!!!

Posted: Sun May 24, 2020 5:21 pm
by Mattie
Hi Lovelife,

thank you for your note. I had mets in my liver and lymph nodes in my abdomen.

When first Diagnosed 13 of 16 lymph nodes came back positive for cancer.

Best,
Sue

Re: Celebrating 10 years since my Stage IV DX!!!!!

Posted: Sun May 24, 2020 11:25 pm
by ChiMama
AWESOME!! Congratulations!

Re: Celebrating 10 years since my Stage IV DX!!!!!

Posted: Mon May 25, 2020 5:56 am
by Siti
Thanks for the update. I really needed to read this. It’s our wedding anniversary today, instead of celebrating, I am hiding in my room crying. This gives us a lot of hope.

Re: Celebrating 10 years since my Stage IV DX!!!!!

Posted: Mon May 25, 2020 8:37 pm
by claudine
That is fantastic! Thank you for posting and giving us hope!

Re: Celebrating 10 years since my Stage IV DX!!!!!

Posted: Mon May 25, 2020 9:25 pm
by CRguy
Damn Straight :shock:
That kicks colorectal BUTT !!!!!

Keep ON keepin' ON sista'

Cheers and Harmony
CRguy

Re: Celebrating 10 years since my Stage IV DX!!!!!

Posted: Mon May 25, 2020 11:12 pm
by Carboxo
Awesome Scan Results :D

Re: Celebrating 10 years since my Stage IV DX!!!!!

Posted: Tue May 26, 2020 10:20 pm
by beach sunrise
I love hearing news like this!!! Thank you and big congrats!!!

Re: Celebrating 10 years since my Stage IV DX!!!!!

Posted: Wed May 27, 2020 8:20 am
by Gravelyguy
Congrats and thank you for the hope you give!

Dave

Re: Celebrating 10 years since my Stage IV DX!!!!!

Posted: Wed May 27, 2020 7:39 pm
by Rikimaroo
Mattie,

It is very encouraging to read your signature and happy that you are 10 years since diagnose and alive. Are you basically doing maintenance chemo since this beast will not leave unless you keep on the chemo?

I just got my pet scan back and again my cancer recurred in the same location in which I recently had surgery. It's really shocking and troubling for it to return after everything I done. Doc said we are going to do maintainence chemo Folfiri and maybe folfox to switch thing if needed, and if things start going back down, maybe just xeloda, which seems like your regime. Also I am going to do avastin. With all this being said, looks like there is positives.

Question for you did you have any particular Mutation with your cancer? NRAS/ KRAS etc..?

Re: Celebrating 10 years since my Stage IV DX!!!!!

Posted: Thu May 28, 2020 2:08 am
by Koreysue
Congrats to you! And thank you for this post of hope.
Ksue

Re: Celebrating 10 years since my Stage IV DX!!!!!

Posted: Thu May 28, 2020 4:30 am
by Atoq
Congratulations and thanks for telling us! :D

Best


Claudia

Re: Celebrating 10 years since my Stage IV DX!!!!!

Posted: Sat May 30, 2020 6:22 pm
by Mattie
Hi there.

Since my last recurrence in March 2016, my Onc has suggested I need to stay on something because "it will definitely come back".

Xeloda seems to kick Cancer ass every time I take it. When it comes back, I'll probably add that back in first to see if it still works. I dropped to Avastin only and have been doing that since Sept 2017....The thinking is that it is keeping me stable....and onc doesn't want to drop it because side effects are minimal and it appears to be working. He says that sometimes when you stop, it doesn't work the same if you need it again. So I am going to keep going. I feel pretty good all things considered.

Good luck to you, I know when it comes back it's the worse. It's happen several times to me now. But we just have to keep getting after it....mine also keep coming back in the same area.



Rikimaroo wrote:Mattie,

It is very encouraging to read your signature and happy that you are 10 years since diagnose and alive. Are you basically doing maintenance chemo since this beast will not leave unless you keep on the chemo?

I just got my pet scan back and again my cancer recurred in the same location in which I recently had surgery. It's really shocking and troubling for it to return after everything I done. Doc said we are going to do maintainence chemo Folfiri and maybe folfox to switch thing if needed, and if things start going back down, maybe just xeloda, which seems like your regime. Also I am going to do avastin. With all this being said, looks like there is positives.

Question for you did you have any particular Mutation with your cancer? NRAS/ KRAS etc..?