Remission!?!

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boxhill
Posts: 591
Joined: Fri Apr 06, 2018 11:40 am

Remission!?!

Postby boxhill » Thu May 21, 2020 8:09 pm

I had an MRI on Wednesday, and discussed the results with my oncologist today. The previously enlarged lymph nodes continue to be normal, and the tiny liver thing is exactly the same. At this point, he thinks it might just be some random scar. There has been no change at all since April 2019. My onc actually used the "R" word: remission.

The upshot, we will stop Keytruda, and scan every three months. Hope that my arthralgia fades, the rapidly the better, which will help me get exercise and manage my T2 diabetes again, and live a normal life.

I'm a happy camper. And realize how lucky I am.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 CT NED
11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Suspend treatment

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CRguy
Posts: 10231
Joined: Sun Feb 10, 2008 6:00 pm

Re: Remission!?!

Postby CRguy » Thu May 21, 2020 11:43 pm

Takin' the WINS wherever we can get them !!!!!!

Cheers and best wishes moving forward
On the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Atoq
Posts: 384
Joined: Wed Oct 25, 2017 9:31 am

Re: Remission!?!

Postby Atoq » Fri May 22, 2020 1:32 am

Congratulations for the fantastic news! :D

All the best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (suspect met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy , stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED

Claudine
Posts: 410
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Remission!?!

Postby Claudine » Fri May 22, 2020 8:56 am

What a lovely word :D
Enjoy!!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 24.1
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: one 1mm stable nodule
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and residual tumor removal 05/20

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beach sunrise
Posts: 225
Joined: Thu Mar 05, 2020 7:14 pm

Re: Remission!?!

Postby beach sunrise » Fri May 22, 2020 3:08 pm

What a good report! Happy Dance and celebrate!!!
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1
7-2 CEA 11.1
7-16 CEA 10.3
7-28 CEA 8.8
8-11 CEA 7.8
9-1 CEA 8.8
9-8 CEA 9
9-16 CEA 9
9-22 CEA 8.6
9-28 CEA 8.5
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

DarknessEmbraced
Posts: 3489
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Remission!?!

Postby DarknessEmbraced » Sat May 23, 2020 10:52 am

Congratulations! That's wonderful! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

boxhill
Posts: 591
Joined: Fri Apr 06, 2018 11:40 am

Re: Remission!?!

Postby boxhill » Wed Aug 12, 2020 5:07 pm

I had my MRI yesterday: still all clear, 3 months out from stopping Keytruda.

This time the radiologist had more to say about the little liver thing, concluding that because of several factors "this does not appear to represent viable tumor." First time a radiologist has come right out and said it. Yay!!

Meanwhile, the arthralgia hasn't diminished much, if at all. Still grateful but hoping...
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 CT NED
11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Suspend treatment

stu
Posts: 1382
Joined: Sat Aug 17, 2013 5:46 pm

Re: Remission!?!

Postby stu » Wed Aug 12, 2020 5:52 pm

Delighted to hear it is a good scan result .

Hope the other aspects of your health pick up soon .
Take care ,

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

User avatar
ginabeewell
Posts: 454
Joined: Wed Oct 24, 2018 10:30 am

Re: Remission!?!

Postby ginabeewell » Wed Aug 12, 2020 11:41 pm

Really happy to hear this! So thrilled for your remission!

Regarding your arthralgia, is that a normal side effect of Keytruda? Guessing so.

But for what it’s worth, I had a ton of joint pain come on in about mid-December. It was three months after I stopped chemo, so even though my onc thought it was chemo-driven arthritis, it didn’t seem right to me.

Then I got a very low but positive mark on a screener for rheumatoid arthritis.

I started to research and came across something called paraneoplastic response. This is when your body mounts an outsized immune reaction to an internal threat (like, say, cancer). It can happen months or even years before cancer is picked up on a CT scan. I had a clean scan a month after my symptoms started and didn’t see anything until two months later.

When I had an appt with a rheumatologist, she said if I had presented in this way without a cancer diagnosis, the first thing she would have done is screen me for it.

My CEA is down to 0.7 after my last 8 rounds of chemo. And my pain / swelling is totally gone now. Will get scan results in the next few days, but if they look good I’ll be even more convinced that last December, my body gave me an early warning!

Anyway, given that Keytruda stimulates the immune system in a very similar way, I am sure that there is a very good chance your pain is just due to that. But didn’t want to not raise my experience JUST in case. : )
45 YO mom of twins (9) and lucky stepmom of 14/17 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
10/18 FOLFOX + Vectibix
12/18 typhlitis (7 days in hospital) but largest met down to 5 cm.
12/18 CEA 4.6
1/18 Resume chemo (#6-8)
3/19 HAI pump placement / colon resection
4/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/19 CEA 1.3
7/19 liver resection
10/19 liver resection
1/20 NED! CEA 0.6
3/20 two new liver mets; FOLFIRI (5) and then add Vectibix (5)
8/20 CEA 0.7
Resection next?

User avatar
beach sunrise
Posts: 225
Joined: Thu Mar 05, 2020 7:14 pm

Re: Remission!?!

Postby beach sunrise » Thu Aug 13, 2020 12:42 am

I love news like this!!!
Congrats and breathe now!!!
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1
7-2 CEA 11.1
7-16 CEA 10.3
7-28 CEA 8.8
8-11 CEA 7.8
9-1 CEA 8.8
9-8 CEA 9
9-16 CEA 9
9-22 CEA 8.6
9-28 CEA 8.5
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

User avatar
Jack&KatiesMommy
Posts: 621
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: Remission!?!

Postby Jack&KatiesMommy » Thu Aug 13, 2020 8:13 am

This is such great news!!!!!!! I am so happy to read your post! Keep us updated as you move toward a long life!!!

Cynthia
Cynthia
Mommy to Jack (8) now (17) and Katie (4) now (13)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

crikklekay
Posts: 102
Joined: Thu Feb 15, 2018 9:47 am
Location: Richmond, VA

Re: Remission!?!

Postby crikklekay » Mon Aug 17, 2020 10:07 am

I'm so happy for you! May your scans continue to be clear <3
Caring for DH John
Colon Cancer, Sigmoid colon
Adenocarcinoma
G2, Moderately differentiated w/invasion of visceral peritoneum
Stage IIIC
Positive lymph nodes: 6/22
Chemotherapy: FOLFOX (6)
12/17 ER and emergency surgery
02/18 Hospital w/ MSSA infected port, PICC line inserted, chest CT scan showed septic emboli & blood clots
03/18 Hospital w/ CDIFF
04/18 Chest CT scan clear
06/18 Colonoscopy Clear
08/18 CT Scan Clear, NEMD
06/19 Colonoscopy Clear
08/19 CT Scan Clear
08/20 CT Scan Clear


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