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Good news & update

Posted: Mon May 18, 2020 3:21 pm
by fdcfromkcmo
Hi! I posted on here for a little bit during treatment for Stage 3 Colon Cancer. If you were to check my history, you'd see that I did six months of Folfox, only to find out that I had suspected metastasis in the lungs, for which I received radiation therapy. At one point my first doctor told me I'd need to be on chemotherapy for the rest of my life.

I got a new doctor who recommended radiation treatment to the lungs and a wait and see approach after that. I had a much better rapport with him and I think he really advocated for the best possible outcomes for me. I never checked back in because I was so excited to be moving on with my life, but having often clicked through the user profiles of people like me, I was always scared to see the people post in despair and then never update with good news or progress.

My good news is that I'm a year and half clear of potentially stage IV colon cancer with growth to the lungs! I am so grateful and happy. I just had a virtual appointment with my doctor. I was 31 when I was diagnosed and scared I wouldn't live the next year. This year I'm turning 35 and I'm healthier and happier than at any point in my 20s, when I was sick and didn't know why. Despite all the body trauma, invasive treatment, and EARLY MENOPAUSE (yeesh) I am doing so great, and I hope newcomers to this board know that there's a way through this. Be your own advocate!

This board was so helpful in dark times but I think it's important to remember that people (like me, I'm sorry!) sometimes check in in moments of extreme distress and don't check back. It's a self-selected group of people and though I received so much good advice, support, and encouragement through these forums you will also see posts by people who are really lost; it can be scary. It was hard not to go down the rabbithole of imagining what happened to those people.

I'm probably not going to log back in because I need a little bit of distance if possible, but I want to let everyone know that recovery IS possible, get a doctor you trust, a plan you believe in, and stay well!!!

Re: Good news & update

Posted: Tue May 19, 2020 3:18 am
by stu
Brilliant news . Glad to hear you are able to leave it all behind you . It’s 11 years this summer for my mum so go catch up and have a wonderful life !
Moving forward and living a good life is a celebration every time .

Re: Good news & update

Posted: Tue May 19, 2020 3:42 am
by Siti
Thanks for sharing your post! It’s nice to receive good news amid the bad news that currently surrounds us. Do come back to share your good news even if it’s just checking in once a year :)

Take good care and all the best!

Re: Good news & update

Posted: Sat May 23, 2020 10:57 am
by DarknessEmbraced
That's wonderful news! :) Congratulations!

Re: Good news & update

Posted: Sun May 24, 2020 4:27 pm
by helenef
This is excellent news and thanks for sharing .
Go live your life, enjoy it, stay well :D