Good news & update

Please feel free to read, share your thoughts, your stories and connect with others!
Posts: 9
Joined: Fri Jul 06, 2018 5:35 pm

Good news & update

Postby fdcfromkcmo » Mon May 18, 2020 3:21 pm

Hi! I posted on here for a little bit during treatment for Stage 3 Colon Cancer. If you were to check my history, you'd see that I did six months of Folfox, only to find out that I had suspected metastasis in the lungs, for which I received radiation therapy. At one point my first doctor told me I'd need to be on chemotherapy for the rest of my life.

I got a new doctor who recommended radiation treatment to the lungs and a wait and see approach after that. I had a much better rapport with him and I think he really advocated for the best possible outcomes for me. I never checked back in because I was so excited to be moving on with my life, but having often clicked through the user profiles of people like me, I was always scared to see the people post in despair and then never update with good news or progress.

My good news is that I'm a year and half clear of potentially stage IV colon cancer with growth to the lungs! I am so grateful and happy. I just had a virtual appointment with my doctor. I was 31 when I was diagnosed and scared I wouldn't live the next year. This year I'm turning 35 and I'm healthier and happier than at any point in my 20s, when I was sick and didn't know why. Despite all the body trauma, invasive treatment, and EARLY MENOPAUSE (yeesh) I am doing so great, and I hope newcomers to this board know that there's a way through this. Be your own advocate!

This board was so helpful in dark times but I think it's important to remember that people (like me, I'm sorry!) sometimes check in in moments of extreme distress and don't check back. It's a self-selected group of people and though I received so much good advice, support, and encouragement through these forums you will also see posts by people who are really lost; it can be scary. It was hard not to go down the rabbithole of imagining what happened to those people.

I'm probably not going to log back in because I need a little bit of distance if possible, but I want to let everyone know that recovery IS possible, get a doctor you trust, a plan you believe in, and stay well!!!
31 y.o. at dx, dx 6/17: RC, stage IIIA
July-August 2017: chemoradiation to shrink tumor
11/7/2017: LAR, 1 lymph node involved, clear margins
12.17-05/18: 12 rounds of Folfox
06/18: 4 mm nodule in lung
07/2018: ileostomy reversal
09/18: 7 mm nodule + 2 & 1 mm nodule in long
10/18: fiduciary markers placed, ongoing struggle w/ insurance :(
11/18: PET scan shows activity in lungs, neck
11/18: Neck biopsy: no cancerous activity in neck! Psych
1/19: Targeted radiation on lung nodules
4/19-now: Scans clear!

Posts: 1396
Joined: Sat Aug 17, 2013 5:46 pm

Re: Good news & update

Postby stu » Tue May 19, 2020 3:18 am

Brilliant news . Glad to hear you are able to leave it all behind you . It’s 11 years this summer for my mum so go catch up and have a wonderful life !
Moving forward and living a good life is a celebration every time .
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Posts: 180
Joined: Thu Aug 01, 2019 10:58 am

Re: Good news & update

Postby Siti » Tue May 19, 2020 3:42 am

Thanks for sharing your post! It’s nice to receive good news amid the bad news that currently surrounds us. Do come back to share your good news even if it’s just checking in once a year :)

Take good care and all the best!
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.

Posts: 3524
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Good news & update

Postby DarknessEmbraced » Sat May 23, 2020 10:57 am

That's wonderful news! :) Congratulations!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Posts: 6
Joined: Mon Oct 07, 2019 4:50 am

Re: Good news & update

Postby helenef » Sun May 24, 2020 4:27 pm

This is excellent news and thanks for sharing .
Go live your life, enjoy it, stay well :D
Dx 07/2019 at 37 (f)
sigmoid colon 17cm from anal verge, 7cm from rectosigmoid junction
Adenocarcinoma, 6cm, G3 Poorly differentiated
cT3dN1M0 (pre-op) and yT0N0M0 (post-treatment)
08/2019: laparoscopic loop colostomy
09-12/2019: neoadjuvant FOLFOXIRI + Avastin for 6 cycles, no radiotherapy
02/2020: laparoscopic high anterior resection, reversal loop colostomy
Complete pathological response, no further treatment needed, now on surveillance.

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”

Who is online

Users browsing this forum: Google [Bot] and 7 guests