Back 2nd time

Please feel free to read, share your thoughts, your stories and connect with others!
Andrea1976
Posts: 383
Joined: Sun Jan 03, 2016 10:32 am

Back 2nd time

Postby Andrea1976 » Tue May 12, 2020 3:12 pm

Hi,

Unfortunately I am back again. Almost 5 years ago I had a cancerous polyp / mushroom type. The cancer was confined to the head, clear stalk. So it was treated by removal only. No surgery. That’s what my cancer center recommended. Every colonoscopy was good until today. I had a clear colonoscopy 2.5 years ago. Tumor was found today. I expect that it might be local reoccurrence since is at the same location. I am having CT scan and blood tests today. Meeting surgical onco tomorrow at the cancer center.
Anybody has had this happen before? I did genetic testing and negative. Also what are the updates for treatments? I hope a lot new options during last 5 years. Thank you.
Stage I
pedunculate polyp in descending colon
moderately diff adenocarcinoma 0.6 cm
Tumor confined to the head of the polyp
Stalk margin 2 cm negative for dysplasia and malignancy
Polyp removed during colonoscopy 1/15/16
No lymphovascular involved
No surgery

stu
Posts: 1343
Joined: Sat Aug 17, 2013 5:46 pm

Re: Back 2nd time

Postby stu » Tue May 12, 2020 6:39 pm

Hi ,

Sorry to see you back . That is disappointing for sure . However good screening has hopefully got this .
I am not too aware of treatment changes for lower stages . Definitely some interesting developments for stage 4 patients with immunotherapy etc , but similar approach as before I would think .

Hopefully others will be along ,
Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

DarknessEmbraced
Posts: 3444
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Back 2nd time

Postby DarknessEmbraced » Sat May 16, 2020 10:39 am

I'm sorry your cancer is back!*hugs* I hope all goes well.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Achilles Torn
Posts: 120
Joined: Fri Dec 16, 2016 2:41 pm

Re: Back 2nd time

Postby Achilles Torn » Sun May 17, 2020 1:08 pm

Hi there,

Sorry to hear you are back but there’s plenty of room for optimism that it will be relatively early.

In my case their were some similarities. I had a pre cancerous polyp removed that showed high grade dysplasia. Clean scopes for 5 years and then a Tumor was discovered in that exact spot. I have read some research and it seems about 30% of the time scope procedures leave cancer cells behind.

It’s still an early catch by other standards and you have a great chance of a good outcome.

AT
40 yo Male. BC Canada. Sigmoid Colectomy Dec. 2016
Pathology T3N2bM1 19 of 24 Nodes Positive + tumour deposits
PET scan - Para-Aortic and Iliac Lymph node spread. Stage VI.
Moderately differentiated. MSS. KRAS/BRAF Wild.
Mutations: TP53, ERBB4, MLL3, PDCD1LG2, PRKDC, SMAD3
FOLFOX Commenced Jan 9/2017 - Avastin(Bev) added after round 1.
June 2017 Dose Reduction on Round 11 due to Neuropathy.
Good PET Scan July 2017 - on maintenance 5FU/Bev every 2 weeks until progression.


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: del and 41 guests

cron