MSK friendly lodging in NYC

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beach sunrise
Posts: 70
Joined: Thu Mar 05, 2020 7:14 pm

MSK friendly lodging in NYC

Postby beach sunrise » Mon May 04, 2020 3:17 pm

Hi all, a new CC patient at center I get chemo was telling me she was recently dx stage 4 CC w/mets to liver. She is allergic to the oxa in folfox so just doing the 5FU right now.. She said they are suggesting chemo for life. I explained oncs are for chemo opinions, surgeons are for surgery opinions. Second opinions can be gold. My question is what hotels are friendly in relation to distance to MSK NYC and isn't outrageous expensive?
Dx 8/19, RC, CEA 86, clinical T3N0M0
Neoadj 5FU/rad 6 wks
Surgery Jan 2020 APR/colostomy, neg margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
presurg cea 24/post 5.9
Adj FOLFOX6, cea 7
1st rd complete, 2nd 3/9/20
MHL1 +
PMS2+
MSH2+
MSH6+
Post surg chemo sensitivity testing at Nagourney Cancer Institute "Test failed due to neo-adj chemorad did its job. Not enough cancer cells to test." Good news cancer pretty much dead, bad news not knowing what chemo would work best for my cancer

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ginabeewell
Posts: 414
Joined: Wed Oct 24, 2018 10:30 am

Re: MSK friendly lodging in NYC

Postby ginabeewell » Mon May 04, 2020 7:39 pm

There is a Courtyard by Marriott that is literally in the same building practically. We liked to stay at the Maxwell, which is a few blocks walk. Sunday nights usually cost $125 or so. And I bet prices are even lower these days!
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

beach sunrise
Posts: 70
Joined: Thu Mar 05, 2020 7:14 pm

Re: MSK friendly lodging in NYC

Postby beach sunrise » Mon May 04, 2020 8:42 pm

Thank you so much, Gina! I hope you are doing OK. I might be joining her on a trip there myself if it turns out I have spread. CEA keeps going up on folfox. Got message a while ago saying onc wants to see me after this round (#6 of 8 ). I really have no idea why sudden appt but thinking he may want to do a scan.
Dx 8/19, RC, CEA 86, clinical T3N0M0
Neoadj 5FU/rad 6 wks
Surgery Jan 2020 APR/colostomy, neg margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
presurg cea 24/post 5.9
Adj FOLFOX6, cea 7
1st rd complete, 2nd 3/9/20
MHL1 +
PMS2+
MSH2+
MSH6+
Post surg chemo sensitivity testing at Nagourney Cancer Institute "Test failed due to neo-adj chemorad did its job. Not enough cancer cells to test." Good news cancer pretty much dead, bad news not knowing what chemo would work best for my cancer

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Jack&KatiesMommy
Posts: 611
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: MSK friendly lodging in NYC

Postby Jack&KatiesMommy » Tue May 05, 2020 9:42 am

I always stay at the Pod (on 55th). It is walking distance to Dr. Kemeny's on 53rd and you can take a shuttle from the MSK 53rd office to the hospital. Very convenient. It is always one of the lowest priced options. However, it is very very basic. Think dorm room type accommodations. Very clean but very small and very basic. Many rooms share floor bathrooms. I have never had a problem with this as I am there for a night only and just need a place to sleep and watch television. (BrownBagger recmmended this Hotel to me about 7 years ago and I use it whenever I have an overnight appointment at MSK.
Cynthia
Mommy to Jack (8) now (17) and Katie (4) now (13)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

beach sunrise
Posts: 70
Joined: Thu Mar 05, 2020 7:14 pm

Re: MSK friendly lodging in NYC

Postby beach sunrise » Tue May 05, 2020 12:55 pm

Thank you so much, J&K's mommy!!! All of you really have helped so much along the way. I am so glad I found this forum. I hope you are doing well? Enjoy the afternoon!
Dx 8/19, RC, CEA 86, clinical T3N0M0
Neoadj 5FU/rad 6 wks
Surgery Jan 2020 APR/colostomy, neg margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
presurg cea 24/post 5.9
Adj FOLFOX6, cea 7
1st rd complete, 2nd 3/9/20
MHL1 +
PMS2+
MSH2+
MSH6+
Post surg chemo sensitivity testing at Nagourney Cancer Institute "Test failed due to neo-adj chemorad did its job. Not enough cancer cells to test." Good news cancer pretty much dead, bad news not knowing what chemo would work best for my cancer

kandj
Posts: 289
Joined: Sun Sep 27, 2015 11:29 am

Re: MSK friendly lodging in NYC

Postby kandj » Tue May 19, 2020 1:23 pm

It really depends on what time of year you go. The courtyard on 3rd and 53rd is fairly reasonable most the year. Sometimes in the summer it is stupid expensive. The Residence Inn on 48th and Lex is usually a good deal. There is a kitchenette with fullsize fridge and they serve a hot breakfast. Again, depends on the time of year. You can get a discount if you use the link on the MSKCC lodging site. The Helmsley Guest Facility next to NYP is about $273 a night for the cheapest studio. Full kitchen and they do not charge any taxes or fees (they are a nonprofit). They are our go to hotel when it is touristy times in NYC. We spent almost a month in NYC the end of Feb-mid March for a few surgeries, and the Residence Inn ended up being the best bargain for us.
wife to DH, dx 8/15 stage IV @36, numerous unresectable liver Mets
resection and HAI placed 12/15
Liver resection 5/19/2016 15-20 mets removed (surgeon lost count, but it hopeful he got it all!)
Recurrence 7/2017 4 Liver mets and one possible lung met
Radiation on liver Mets 12/17
Lung met 10/18
VATS on lung met 11/18 started xeloda
Chemo break 6/19-11/19 lung/adrenal gland recurrence 11/19
Adrenal ablation2/20 Robotic Assisted VATS 3/20 Xeloda again

kandj
Posts: 289
Joined: Sun Sep 27, 2015 11:29 am

Re: MSK friendly lodging in NYC

Postby kandj » Tue May 19, 2020 1:25 pm

Oh, and there is also the Hope Lodge. That is free but can be hard to get into. If your friend is having trouble affording accommodation, please encourage them to reach out to an MSKCC social worker. I have heard from people in the waiting room how wonderful they are at helping with lodging, sometimes at no cost.
wife to DH, dx 8/15 stage IV @36, numerous unresectable liver Mets
resection and HAI placed 12/15
Liver resection 5/19/2016 15-20 mets removed (surgeon lost count, but it hopeful he got it all!)
Recurrence 7/2017 4 Liver mets and one possible lung met
Radiation on liver Mets 12/17
Lung met 10/18
VATS on lung met 11/18 started xeloda
Chemo break 6/19-11/19 lung/adrenal gland recurrence 11/19
Adrenal ablation2/20 Robotic Assisted VATS 3/20 Xeloda again

User avatar
ginabeewell
Posts: 414
Joined: Wed Oct 24, 2018 10:30 am

Re: MSK friendly lodging in NYC

Postby ginabeewell » Tue May 19, 2020 11:44 pm

kandj wrote:Oh, and there is also the Hope Lodge. That is free but can be hard to get into. If your friend is having trouble affording accommodation, please encourage them to reach out to an MSKCC social worker. I have heard from people in the waiting room how wonderful they are at helping with lodging, sometimes at no cost.


It took me three calls to figure out Hope Lodge is only an options for patients who have treatment at least three times a week. So it’s not a good option for surgery or regular chemo unfortunately.
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

beach sunrise
Posts: 70
Joined: Thu Mar 05, 2020 7:14 pm

Re: MSK friendly lodging in NYC

Postby beach sunrise » Wed May 20, 2020 12:34 am

Thank you so much! I will also pass along this info too if I see her again. I hope you all are doing good and staying safe!
My cancer center still doesn't have proper protection. The nurses are still wearing homemade mask. My stress level is so high when I am there for chemo!
Dx 8/19, RC, CEA 86, clinical T3N0M0
Neoadj 5FU/rad 6 wks
Surgery Jan 2020 APR/colostomy, neg margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
presurg cea 24/post 5.9
Adj FOLFOX6, cea 7
1st rd complete, 2nd 3/9/20
MHL1 +
PMS2+
MSH2+
MSH6+
Post surg chemo sensitivity testing at Nagourney Cancer Institute "Test failed due to neo-adj chemorad did its job. Not enough cancer cells to test." Good news cancer pretty much dead, bad news not knowing what chemo would work best for my cancer


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