looking for advice on recent stage IV diagnosis

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Joined: Wed Apr 15, 2020 9:24 am

looking for advice on recent stage IV diagnosis

Postby missb2020 » Thu Apr 30, 2020 1:48 pm

Diagnosed with stage II Colon Cancer in 2016 had resection done and then 6 months of xeloda . Have been great for 4 years now and then boom recent scan showed 7 cm mass on right side of liver near gallbladder. Did a biopsy and confirmed so just started first round of chemo.

Had a call with a Specialist / Liver Surgeon and and said " it is treatable" recommend 2 months of chemo then hepatic embolization followed by one more month of chemo and then surgery.

When I go in for my treatment yesterday at local oncologist he tells me the specialist wants me to come in and have another biopsy for a better sample to make sure this is not Cholangiocarcinoma. We had just gotten use to the Stage IV Colon Cancer Diagnosis and now not sure what to make of this made the mistake of looking some things up on this and now we are absolutely terrified.

Anyone have any advice or similar situation? Is it possible he is just being extra cautious before doing the embolization? I have not spoken directly to the specialist yet. Suppose to be getting a call from him soon to set up the biopsy and some gene testing.

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Joined: Sat Aug 17, 2013 5:46 pm

Re: looking for advice on recent stage IV diagnosis

Postby stu » Sun May 03, 2020 3:23 pm

Hi ,
I had to look that up and can understand your concern but hoping it’s not the case and more of a ruling out than ruling in sort of thing .
I hope they can clear this up for you quickly as that’s a lot of pressure for you just now .
If it’s a secondary met from bowel cancer which would be in keeping with the pattern of spread then there are many options and positive outcomes .
Thinking of you ,
Take care ,
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Posts: 495
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: looking for advice on recent stage IV diagnosis

Postby Rock_Robster » Mon May 04, 2020 4:51 am

Hi, I’m sorry for the diagnosis and all the recent stress. It’s good that they’re being cautious, but medically I was always taught “when you hear hoof beats think horses, not zebras”. Under the circumstances it’s far more likely to be CRC metastasis (and hopefully a treatable one); but good to know for sure. Hoping you get positive news soon.

Male 38; Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+. 4 liver mets
pT3N1aM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0, Mar-20=2.2, May-20=1.9.
11/18 FOLFOX x6
3/19 Liver resection
5/19 25x pelvic VMAT radiation; complete metabolic response
07/19 ULAR (robot), temp ileo, 1/27 LN
08/19 Missed a liver spot
08-11/19 FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 Liver resection #2
02/20 Ileostomy reversed
03/20 PET & MRI = NED!

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