SBRT

Please feel free to read, share your thoughts, your stories and connect with others!
Cydni50
Posts: 8
Joined: Sun Dec 22, 2019 6:25 pm
Facebook Username: Cyndi Gilbert-den Boer

SBRT

Postby Cydni50 » Mon Apr 20, 2020 5:26 am

Hi all, My latest Pet/CT scan now shows another small tumour in my left lung after the RFA treatment in January. My question is could this be seeding? I don't believe this new tumour was there previously as it has never been reported on from any scans. Also has anyone had SBRT and can advise what to expect? Thanks in advance for any information...
Female 59 years
Dx Feb-16 Rectal Cancer - Staging T3 - NO2
Mar-16 Ileostomy + Port Inserted
Apr 16 8 cycles 5FU + 30 rds Pelvic Radiation
Jul-16 Ultra Low Anterior resection
Aug 16 FOLFOX
Dec-16 Closure Loop Ilesostomy and Port removal
Jul-17 Mets- Lungs 3 - 4 Lesions ??
Jul-17 PICC line inserted
Jul 17 5/8 cycles Irinotecan
Oct - 17 Xeloda + Avastin
Nov-19 VATS - R/Lung - 2 Lesions
Jan-20 RFA - L/Lung
Jan-20 Avastin only
April-20 Cybersknife L/Lung

User avatar
CRguy
Posts: 10245
Joined: Sun Feb 10, 2008 6:00 pm

Re: SBRT

Postby CRguy » Mon Apr 20, 2020 12:47 pm

This search will give you a place to check for first hand info.
SBRT

I had a VATS procedure, not SBRT,
..... BUTT sending you best wishes !

Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

lovelife789
Posts: 160
Joined: Thu Aug 24, 2017 5:28 am

Re: SBRT

Postby lovelife789 » Mon Apr 20, 2020 3:41 pm

8) Hi there,

I have done SBRT, but not to my lungs. I know someone who has done SBRT to their lungs. I can share with you both experience.

SBRT was very easy to me. I had a total of 5 sessions to my pelvic area, I hadn't done more as it would damage too much of my colon. Each session lasted for about 15 mins (the actual session lasted for 10 mins, 5 mins went to ensuring you are positioned correctly in the machine). No pain, didn't feel anything. A tiny bit nausea, no diahrrea, no dry skin, nothing.
I had some back pain some days after sessions completion which may or may not be related to SBRT.

My friend who did SBRT to her lungs had more nausea but very easy compared to chemo, some pressing to the chest when walking up stairs or walking fast. Also quite easy to her.

It's a great technology from my point of view. Gd luck to you! 8)
F/38 - Dx 8 Mar 17, CEA 189.5
Stage IV Sig. Colon, Liver mets, T3N0M1a, KRAS NRAS Wild
3/17- 6/17 - 6 x FOLFOX + Erbitux
7/17 - 1st & 2nd Liver resec
9-12/17' - 13 x FOLFOX
1-6/18 - NED
6/18 - PET SCAN showed a 0.8mm lung nodule, VATs
8/18 - 4/19 - NED
5/19 - recurrence 1 x PALN, 1x common iliac
FOLFIRI + Avastin x 12 - complete response, SBRT
12/19-5/20 - NED
5/20 - recurrence in LNs, tiny liver spots x 2, W n W due to COVID
8/20 - LNs very slightly increased, liver stable, one new liver spot

Claudine
Posts: 440
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: SBRT

Postby Claudine » Mon Apr 20, 2020 4:37 pm

Same as Lovelife789 - DH had SBRT for his spine and it worked great, minimal side effects (a little nausea and fatigue but only during the treatment, not after). I believe others on this forum have had it done on lung mets.
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 24.1
Scan 03/19: Multiple small lung nodules, now gone
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and partial corpectomy 05/20
Scan 09/20: nothing to report

kandj
Posts: 301
Joined: Sun Sep 27, 2015 11:29 am

Re: SBRT

Postby kandj » Tue Apr 21, 2020 9:22 pm

Also not lungs, but DH had SBRT done on his liver in Dec. 2017. He was tired, but that seemed to be his only real issue. He had 5 sessions a week for 3 weeks.
wife to DH, dx 8/15 stage IV @36, numerous unresectable liver Mets
resection and HAI placed 12/15
Liver resection 5/19/2016 15-20 mets removed (surgeon lost count, but it hopeful he got it all!)
Recurrence 7/2017 4 Liver mets and one possible lung met
Radiation on liver Mets 12/17
Lung met 10/18
VATS on lung met 11/18 started xeloda
Chemo break 6/19-11/19 lung/adrenal gland recurrence 11/19
Adrenal ablation2/20 Robotic Assisted VATS 3/20 Xeloda again

zephyr
Posts: 297
Joined: Thu Aug 18, 2016 7:31 am

Re: SBRT

Postby zephyr » Thu Apr 23, 2020 10:09 am

I had SBRT to one lung met, 5 sessions over 2 weeks, as I recall. I didn't notice much difference, maybe just some fatigue.
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, MSS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr-2019 - ? Xeloda/Avastin, SBRT, continue Xeloda/Avastin

Cydni50
Posts: 8
Joined: Sun Dec 22, 2019 6:25 pm
Facebook Username: Cyndi Gilbert-den Boer

Re: SBRT

Postby Cydni50 » Fri Apr 24, 2020 12:31 am

Thanks everybody for your responses. So interesting to see all the different journeys we are on. Zephyr did you need to have the metal seed inserted into the lung tumour prior to the radiation treatment?
Female 59 years
Dx Feb-16 Rectal Cancer - Staging T3 - NO2
Mar-16 Ileostomy + Port Inserted
Apr 16 8 cycles 5FU + 30 rds Pelvic Radiation
Jul-16 Ultra Low Anterior resection
Aug 16 FOLFOX
Dec-16 Closure Loop Ilesostomy and Port removal
Jul-17 Mets- Lungs 3 - 4 Lesions ??
Jul-17 PICC line inserted
Jul 17 5/8 cycles Irinotecan
Oct - 17 Xeloda + Avastin
Nov-19 VATS - R/Lung - 2 Lesions
Jan-20 RFA - L/Lung
Jan-20 Avastin only
April-20 Cybersknife L/Lung

zephyr
Posts: 297
Joined: Thu Aug 18, 2016 7:31 am

Re: SBRT

Postby zephyr » Sat Apr 25, 2020 4:30 pm

Cydni50 wrote:Zephyr did you need to have the metal seed inserted into the lung tumour prior to the radiation treatment?

No. The only thing I had to do prior to SBRT was go in for a scan to identify the exact location of the tumor, and then they marked it on my skin so they could zero in precisely during the treatments.
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, MSS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr-2019 - ? Xeloda/Avastin, SBRT, continue Xeloda/Avastin

James65
Posts: 383
Joined: Thu Mar 06, 2008 9:41 am
Location: Exeter, NH
Contact:

Re: SBRT

Postby James65 » Fri Aug 07, 2020 12:20 pm

Hi,
I had SBRT to my left lung around the same time you did and wondering how you are doing.

I'm about six months out and just went for my second follow up CT scan and of course very nervous. What's your experience been like?

For me, mostly fatigue, winded a bit easier, a tiny bit of soreness in the lung.

Best,
James
Diagnosed with stage III rectal tumor (though probably late stage II) January 2006.
Chemo/Radiation
Full APR Surgery
Folfox Chemo
So far NED.
Oops. Liver tumor diagnosed 10/13 after elevated CEA. Liver resection for 5cm tumor 12/6/13. So far so good.
Oops again, one tumor in each lung diagnosed 8/8/16. One too small to deal with and the other resected in late September. Wait and watch for now.
Oops, another lung Met in upper left lobe on edge of previous resection scar 11/11/19.


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 2 guests