I hate CEA Test

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Rikimaroo
Posts: 270
Joined: Tue Dec 20, 2016 8:48 pm

I hate CEA Test

Postby Rikimaroo » Mon Mar 23, 2020 1:52 pm

Hello All,

I hope everyone is staying safe and practicing social distancing if possible. I have the luxury of working from home, but still concerned about the business I support. So far since surgery on October 2019 for recurrence all is clear with last pet scan done in February. CEA was 3.1 in January and Chemo was completed in January. My CEA is now 8.7 and to say its driving me crazy is an understatement. PET SCAN was clean. Next one scheduled for May 2020. ONcologist said we just have to keep an eye and didn't presume anything until next scan. My concern is something is churning and its frustrating.

Anyways will keep you all posted.

Best,
Rikimaroo
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left seminal vescial/pelvic sidewall - 10/7/2019 resection surgery, perm bag, requested
FolFiri 11/6 - 5 rounds

NHMike
Posts: 2398
Joined: Fri Jul 21, 2017 3:43 am

Re: I hate CEA Test

Postby NHMike » Mon Mar 23, 2020 4:35 pm

I think that many of us have run into this - hopefully it's nothing. I assume that you're getting 3-month blood tests so you should have another next month, hopefully it goes down.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Rikimaroo
Posts: 270
Joined: Tue Dec 20, 2016 8:48 pm

Re: I hate CEA Test

Postby Rikimaroo » Tue Mar 24, 2020 1:54 pm

Thanks NHMike. Yes I have 3 months surveillance plan at the moment. Next tests in May, so hopefully it does go down. Is there any recommendations on things to take perhaps to help? Natural stuff? :P
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left seminal vescial/pelvic sidewall - 10/7/2019 resection surgery, perm bag, requested
FolFiri 11/6 - 5 rounds

NHMike
Posts: 2398
Joined: Fri Jul 21, 2017 3:43 am

Re: I hate CEA Test

Postby NHMike » Tue Mar 24, 2020 2:01 pm

Rikimaroo wrote:Thanks NHMike. Yes I have 3 months surveillance plan at the moment. Next tests in May, so hopefully it does go down. Is there any recommendations on things to take perhaps to help? Natural stuff? :P


Not that I know of. I'd rather have the real number anyways.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT


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