Indigo wrote:Thank you for the links, these have great experiences and information. I'll revisit them after I have more information from my Oncologist. Thank you..
You're welcome; I have some additional questions and recommendations for your upcoming visit with the oncologist, however:Questions:
- When is your visit with the oncologist?
- Is this your first
visit with her? If so, have you checked on her qualifications/experience and whether she is highly qualified to manage your type of cancer (colorectal)?
- Do you have the information on your MSI (micro satellite instability)
status? This is necessary for deciding between the different first-line protocols available for adjuvant chemotherapy. (In the U.S., since January 1, 2018 this biomarker has been required of all
patients, of all stages, who have been diagnosed with CRC). It is essential for making a correct initial chemotherapy decision. Recommendations:
- Be active and not passive in your meeting with the oncologist. Do not just sit and listen passively, since you might just be given a standard "one-size-fits-all" chemo overview that's not really focused on what will be best for you in terms of adjuvant therapy. You need to be prepared to ask intelligent questions to clarify anything that is unclear or ambiguous.
- Be prepared with a prioritized list of questions to insure that at least your most important concerns are addressed by the end of the meeting.
- Take notes during the meeting, or bring along a friend who will take notes for you so that you have a good written record of what was said, including any technical jargon that was given. Or, ask permission to have the conversation recorded on your smartphone, if you have one. There are apps available for doing this, e.g., https://www.medcorder.com
- If your oncologist is recommending only one regimen without giving you a choice, then ask why this one is the preferred one and why the other ones are not preferred. If your oncologist gives you a choice between several options, be sure to ask about all
of the advantages and disadvantages of each of the options that you have been given.
- Tell us what happened at the meeting, since there may be people on this board who can provide additional information that will help in your decision making process. Do not sign an "Informed Consent For Treatment" until you are sure that you have evaluated all the relevant information available.