KarenE wrote:Hello, yes actually had an appointment today. 5 confirmed liver mets. An unrelated ultrasound detected suspicious lesions so ct scan followed. They were unsure if mets so then mri and pet scan to evaluate further. MDT meeting between liver surgeon, oncologist and specialist to decide on which path to take is happening on Monday. Hopefully after that we will have a plan. Bit of a shock that it has come back after 7 years but it is what it is. My cea has never been more than 2 since the day I was originally diagnosed so it isn't a good indicator for me. Best wishes to your husband too and hope all goes well.
Karen, I see by your signature that you had two liver lesions at your original diagnosis in 2013. I am assuming they were resected at some point since you said you were declared NED in 2018??? If the resection was done in 2018, you are right in the statistical norm for a recurrence (2 years post-resection).
It sounds like you're one of the people for whom CEA is not
a good indicator. Just curious if your oncologist has ever suggested a CA19-9 and/or an LDH test instead? They often work for a "heads up" for recurrences.
Hopefully, your docs will come up with a plan that will get you back to NED as soon as possible! Hang in there!