Surgery tomorrow APR with permanent Bag, praying for best results

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PaulSmarinecorps
Posts: 15
Joined: Wed Nov 06, 2019 8:51 pm
Facebook Username: Paul Smith

Surgery tomorrow APR with permanent Bag, praying for best results

Postby PaulSmarinecorps » Wed Mar 18, 2020 8:40 am

Have me second major surgery in the morning and nervous as heck! First one I had no clue what to expect so I walked in there like a champ, this time I know what I’m waking up to and walking in there like a scared cat!
37 yo male diagnosed 5-14-19
Adenacarcinoma
Stage 4 with liver met
6 rounds folfox
9-19 liver abl
9-19 lar surgery
10-19 positive margins
6 more rounds folfox

Lee
Posts: 6027
Joined: Sun Apr 16, 2006 4:09 pm

Re: Surgery tomorrow APR with permanent Bag, praying for best results

Postby Lee » Wed Mar 18, 2020 9:18 am

Good luck tomorrow. I too have a permanent bag, coming up on 16 years now. Best decision I ever made. There is a learning curve in the beginning, butt after a while, dealing with it is like brushing your teeth. Second nature.

There is a web site UOAA. United Ostomy Association of America

https://www.uoaa.org/forum/index.php

that you might want to check out.

Just remember to walk, walk, walk, the hospital halls. I truly believe it does help in the healing process.

You can do this,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

beach sunrise
Posts: 22
Joined: Thu Mar 05, 2020 7:14 pm

Re: Surgery tomorrow APR with permanent Bag, praying for best results

Postby beach sunrise » Wed Mar 18, 2020 11:36 am

It does play with your mind, but know you need this and will be fine! I too had this surgery. Being a planner and one who has to know everything I watched the surgery online to be better prepared so I wouldn't freak out when I woke up. I'll be thinking about you. Please update when you feel like it. And remember, You will be fine!!!!
Dx 8/19, RC, CEA 86, clinical T3N0M0
Neoadj 5FU/rad 6 wks
Surgery Jan 2020, neg margins T4bN1a IIIC G2 MSI- 1/20 LN+
presurg cea 24/post 5.9
Adj FOLFOX6, cea 7
1st rd complete, 2nd 3/9/20
MHL1 +
PMS2+
MSH2+
MSH6+
Post surg chemo sensitivity testing at Nagourney Cancer Institute "Test failed due to neo-adj chemorad did its job. Not enough cancer cells to test." Good news cancer pretty much dead, bad news not knowing what chemo would work best for my cancer

Lee
Posts: 6027
Joined: Sun Apr 16, 2006 4:09 pm

Re: Surgery tomorrow APR with permanent Bag, praying for best results

Postby Lee » Fri Mar 20, 2020 5:07 pm

Hope you're doing okay. Update when you can.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

beach sunrise
Posts: 22
Joined: Thu Mar 05, 2020 7:14 pm

Re: Surgery tomorrow APR with permanent Bag, praying for best results

Postby beach sunrise » Sat Mar 21, 2020 12:19 pm

You have been on my mind and in my prayers.
Dx 8/19, RC, CEA 86, clinical T3N0M0
Neoadj 5FU/rad 6 wks
Surgery Jan 2020, neg margins T4bN1a IIIC G2 MSI- 1/20 LN+
presurg cea 24/post 5.9
Adj FOLFOX6, cea 7
1st rd complete, 2nd 3/9/20
MHL1 +
PMS2+
MSH2+
MSH6+
Post surg chemo sensitivity testing at Nagourney Cancer Institute "Test failed due to neo-adj chemorad did its job. Not enough cancer cells to test." Good news cancer pretty much dead, bad news not knowing what chemo would work best for my cancer


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