Clear scans!

Please feel free to read, share your thoughts, your stories and connect with others!
Posts: 231
Joined: Sun May 13, 2018 10:11 pm

Re: Clear scans!

Postby Trying » Fri Mar 20, 2020 8:56 pm

Terrific news!
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

Posts: 471
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Clear scans!

Postby Rock_Robster » Fri Mar 20, 2020 9:52 pm

JJH wrote:Rob -

Great news! I'm so happy for you. :D

I was wondering if your medical team is planning to create a Survivorship Care Plan for you. In the U.S., the NCCN encourages medical teams to develop a written "Survivorship Care Plan" for patients as they transition from active treatment to the five-year followup period. Does your medical team provide that kind of support?

    In 2019, Rock_Robster wrote:...
    My alternative med team is a bit more consolidated - I have one naturopath/herbalist and one acupuncturist/TCM. I also have a radiation onc as my primary was rectal.

    My main comment would be that I’ve also kept quite close contact with my two surgeons - liver & colorectal. I find they have a lot of useful guidance on my broader treatment and follow up, and often a slightly different perspective to my medical oncologist. I would recommend anyone at stage IV establish a direct relationship with a high-volume surgical specialist, even if they aren’t yet operable. These are the people you ultimately *want* to be meeting, so it’s good to get their advice early on.


Thanks JJH!

I do have a plan in terms of ongoing surveillance. Basically it’s quarterly scans and bloodwork (alternating CT and PET, plus liver MRIs as my liver has been dodgy on CT), with annual colonoscopies. After a few years they might go to 6-monthly scans depending on things have gone. My med onc is on point for coordinating, and the liver and colorectal surgeons will get results and see me if needed.

For the other stuff my oncologist doesn’t really get involved, but I also have a family doc, integrative doc, psychologist and nutritionist; so using their input I’ve kind of put my own plan together.

Male 38; Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+. 4 liver mets
pT3N1aM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0, Mar-20=2.2
11/18- FOLFOX x6
3/19- Liver resection
5/19- 25 x pelvic VMAT radiation; complete metabolic response
07/19- ULAR (robot), temp ileo, 1/27 LN
08/19- Missed a liver spot
08-11/19- FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19- Liver resection #2
02/20- Ileostomy reversed
03/20- PET & MRI = NED!

Posts: 338
Joined: Wed Jan 14, 2015 6:09 am

Re: Clear scans!

Postby plastikos » Sat Mar 21, 2020 2:24 am

This is awesome news Rob. Congrats! Celebrate!
St. IV Colon CA @ 37, male, Kras wild, MSI-high (2014)
11/2014 Right Hemicolectomy + Liver Resection
12/2014 - 6/2015 FOLFOX + Cetuximab
10/2015 - Recurrence liver
Liver resection 10/2015
FOLFIRI 11/2015 - 5/2016
Recurrence liver, nodes 11/2016
Pembrolizumab started 12/2016 -> pseudoprogression(?) -> biliary obstruction -> biliary stenting
Chemo 4x: most mets inactive and smaller on PET-CT
March 2017 - Back on Pembrolizumab again
Sept 2017 - SIRT - > NED
2019 NED

Posts: 3428
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Clear scans!

Postby DarknessEmbraced » Sat Mar 21, 2020 10:38 am

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Posts: 436
Joined: Mon Oct 01, 2018 4:29 pm

Re: Clear scans!

Postby Punky44 » Sat Mar 21, 2020 1:38 pm

Just seeing this...congratulations!!!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 2.1; 1.9; 2.6; 2.8
6/28/19 Reversal and port out
10/22/19: CT showed new nodules
1/28/20: CT showed nodules shrinking

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Posts: 39
Joined: Sat Aug 24, 2019 6:01 am
Location: San Francisco

Re: Clear scans!

Postby jsbsf » Sat Mar 21, 2020 5:43 pm

Wow. That is really good news. I’ve been following your progress since DH diagnosis last August. I’m really happy for you and everyone here who gets to NED.
DH 61
8/23 C-scopy, 5+cm mass. CEA:4.1
8/26 CT ~1cm lvr met?
9/6 PET: liver spot
9/16 MSS. MRI: 2 liver mets: 2.7 & 7mm
9/23 Port
9/30 Start FOLFOX 1-6
10/4 Lg lvr met ~3.7cm (raised concern), pri tmr stable.
CEA: 10/13,12.5;10/27,4.7;11/10,3.3; 11/24,3.1;12/8,3.3
11/5 both lvr mets ~ 2/3 smaller.
12/17 PET: sm lvr met gone, remaining tmrs @10% of orig sz & actvty
Chemo break
MWA 2/5, Lap resection 2/11
CEA: 3/1,2.3; 3/15, 2.1
3/2 start FOLFOX 7-12

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”

Who is online

Users browsing this forum: No registered users and 31 guests