Clear scans!

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Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: Clear scans!

Postby Trying » Fri Mar 20, 2020 8:56 pm

Terrific news!
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

Rock_Robster
Posts: 1027
Joined: Thu Oct 25, 2018 5:27 am
Location: Brisbane, Australia

Re: Clear scans!

Postby Rock_Robster » Fri Mar 20, 2020 9:52 pm

JJH wrote:Rob -

Great news! I'm so happy for you. :D

I was wondering if your medical team is planning to create a Survivorship Care Plan for you. In the U.S., the NCCN encourages medical teams to develop a written "Survivorship Care Plan" for patients as they transition from active treatment to the five-year followup period. Does your medical team provide that kind of support?

    In 2019, Rock_Robster wrote:...
    My alternative med team is a bit more consolidated - I have one naturopath/herbalist and one acupuncturist/TCM. I also have a radiation onc as my primary was rectal.

    My main comment would be that I’ve also kept quite close contact with my two surgeons - liver & colorectal. I find they have a lot of useful guidance on my broader treatment and follow up, and often a slightly different perspective to my medical oncologist. I would recommend anyone at stage IV establish a direct relationship with a high-volume surgical specialist, even if they aren’t yet operable. These are the people you ultimately *want* to be meeting, so it’s good to get their advice early on.

    Cheers
    Rob

Thanks JJH!

I do have a plan in terms of ongoing surveillance. Basically it’s quarterly scans and bloodwork (alternating CT and PET, plus liver MRIs as my liver has been dodgy on CT), with annual colonoscopies. After a few years they might go to 6-monthly scans depending on things have gone. My med onc is on point for coordinating, and the liver and colorectal surgeons will get results and see me if needed.

For the other stuff my oncologist doesn’t really get involved, but I also have a family doc, integrative doc, psychologist and nutritionist; so using their input I’ve kind of put my own plan together.

Thanks
Rob
41M Australia
2018 Dx RC
G2 EMVI LVI, 4 liver mets
pT3N1aM1a Stage IVa MSS NRAS G13R
CEA 14>2>32>16>19>30>140>70
11/18 FOLFOX
3/19 Liver resection
5/19 Pelvic IMRT
7/19 ULAR
8/19 Liver met
8/19 FOLFOX, FOLFOXIRI, FOLFIRI
12/19 Liver resection
NED 2 years
11/21 Liver met, PALN, lung nodules
3/22 PVE, lymphadenectomy, liver SBRT
10/22 PALN SBRT
11/22 Liver mets, peri nodule. Xeloda+Bev
4/23 XELIRI+Bev
9/23 ATRIUM trial
12/23 Modified FOLFIRI+Bev
3/24 VAXINIA (CF33 + hNIS) trial

plastikos
Posts: 351
Joined: Wed Jan 14, 2015 6:09 am

Re: Clear scans!

Postby plastikos » Sat Mar 21, 2020 2:24 am

This is awesome news Rob. Congrats! Celebrate!
St. IV Colon CA @ 37, male, Kras wild, MSI-high (2014)
11/2014 Right Hemicolectomy + Liver Resection
12/2014 - 6/2015 FOLFOX + Cetuximab
10/2015 - Recurrence liver
Liver resection 10/2015
FOLFIRI 11/2015 - 5/2016
Recurrence liver, nodes 11/2016
Pembrolizumab started 12/2016 -> pseudoprogression(?) -> biliary obstruction -> biliary stenting
Chemo 4x: most mets inactive and smaller on PET-CT
March 2017 - Back on Pembrolizumab again
Sept 2017 - SIRT - > NED
2019 NED

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Clear scans!

Postby DarknessEmbraced » Sat Mar 21, 2020 10:38 am

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Clear scans!

Postby Punky44 » Sat Mar 21, 2020 1:38 pm

Just seeing this...congratulations!!!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

jsbsf
Posts: 107
Joined: Sat Aug 24, 2019 6:01 am
Location: San Francisco

Re: Clear scans!

Postby jsbsf » Sat Mar 21, 2020 5:43 pm

Wow. That is really good news. I’ve been following your progress since DH diagnosis last August. I’m really happy for you and everyone here who gets to NED.
DH 61
2019 4A t3 n2 m1a
8/23 C-scopy, 5+cm mass. CEA:4.1
9/16 MSS. MRI: 2 lvr mets: 2.7 & 7mm
9/30 Start FOLFOX 1-6
10/4 Lg lvr met ~3.7cm, pri tmr stable.
CEA: 10/13,12.5;10/27-12/8 btw 4.7 & 3.1
11/5 both lvr mets ~ 2/3 smaller.
12/17 PET: significant improv.
2020
MWA 2/5, Lap resection 2/11
CEA: 3/1-5/31 btw 2.1&2.9
3/2 start FOLFOX 7-12
7/23-29 EBRT
10/2/2020 NED/W&W
4/2022 EUS-FNA,MRI: recur.;
5/2022:CT scan no mets. APR.
7-12/2023 Xeloda
4/2023 CT/MRI NED


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