We've lost Ben (Pyro70)

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brokenwings
Posts: 113
Joined: Mon Jan 07, 2019 1:50 am

We've lost Ben (Pyro70)

Postby brokenwings » Sat Mar 14, 2020 5:03 pm

And the world is a much darker place...

Ben was selflessly following the patients involved in the different Regonivo trials...

He was always there for whoever needed a piece of advice...

He was a loyal friend...

He will be dearly miss in the CRC boards...

He must be riding the most beautiful waves now, I'm sure...

I'm deeply heartbroken for all of us...
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy. Primary tumour still there.
Folfirinox: 6 cycles
CT Scan/PET Scan: ok for surgery
Surgery (CRS + HIPEC) 04/29: not optimally resectable, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin).
10/31/2019: Hipec + 6 weeks in hospital
12/30/2019: 27mm liver met

stu
Posts: 1299
Joined: Sat Aug 17, 2013 5:46 pm

Re: We've lost Ben (Pyro70)

Postby stu » Sat Mar 14, 2020 6:35 pm

Oh no ! That is heartbreaking news . Today is a sad day for sure . 2020 is proving difficult with so much loss.
I liked the Pryo twins . A bit of a lively spirit .
Peace be his journey.
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

boxhill
Posts: 490
Joined: Fri Apr 06, 2018 11:40 am

Re: We've lost Ben (Pyro70)

Postby boxhill » Sat Mar 14, 2020 7:06 pm

Very sad news indeed.

Has anyone heard from Pyro lately?
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
Neulasta 6/28
7/18 CT NED
11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: many fails before Celebrex helps
12/23/19 CT stable

Nordy1
Posts: 38
Joined: Tue Oct 02, 2018 11:45 pm

Re: We've lost Ben (Pyro70)

Postby Nordy1 » Sun Mar 15, 2020 1:17 am

I’m so sorry to hear this, he was very selfless in giving of his time -very active on the boards for all the newcomers.

He will be missed
Nordy1
jan 2018 emergency room via ambulance rectal bleeding event
dx Feb 2018 sigmoid adenocarcinoma 2.5 cm, 3 small extranodal foci resected march 2018
stage 3A T1 n1c
multiple indeterminent nodes in liver, lungs and kidney
11 rounds folfox with oxyplatin stopped with full nephropathy of hands and feet
currently waiting next scan in Feb. 2019

AlexandraZ
Posts: 171
Joined: Fri Aug 23, 2019 8:25 am

Re: We've lost Ben (Pyro70)

Postby AlexandraZ » Mon Mar 16, 2020 4:08 am

Oh no, so sorry to hear this. Always so sad to lose a member, especially someone as helpful and active like Pyro70.

I've been thinking about Pyro too. He hasn't been online/active since December. I hope he's ok!
Boyfriend 28yo dx February 2019, CEA 70,480
Stage 4 CRC with multiple mets to liver & lungs
KRAS, NRAS, BRAF wild type, MSS
12x FOLFIRI + Vectibix
September 2019 CEA 210, 60% reduction in size, chemo break!

Wewillfight
Posts: 22
Joined: Sun Mar 03, 2019 5:27 am

Re: We've lost Ben (Pyro70)

Postby Wewillfight » Tue Mar 17, 2020 1:25 pm

Deepest condolences :(

Unfortunately my soldier of a brother is nearing the end of his valiant battle.

Key message is if you have any peri involvement act quickly and aggressively.

Love to all.
40 y/o
Diag Nov 2016 stage IIIc, surgery, colostomy, 2 lymph involved
6 months FOLFOX
NED
Nov 2018 recurrence , surgery , some spread to pertineum
Jan-June 2019 Folfiri+Cetux
Clear scans
August 2019: small bowel inflammation, partial blockage symptoms

stu
Posts: 1299
Joined: Sat Aug 17, 2013 5:46 pm

Re: We've lost Ben (Pyro70)

Postby stu » Wed Mar 18, 2020 1:05 pm

Thinking of you , wewillfight, sad days for sure .
Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Lee
Posts: 6027
Joined: Sun Apr 16, 2006 4:09 pm

Re: We've lost Ben (Pyro70)

Postby Lee » Wed Mar 18, 2020 4:19 pm

AlexandraZ wrote:Oh no, so sorry to hear this. Always so sad to lose a member, especially someone as helpful and active like Pyro70.

I've been thinking about Pyro too. He hasn't been online/active since December. I hope he's ok!


I've been thinking about him too.

(((Wewillfight))) I pray your brother is pain free surrounded by family, friends and love.

My condolences to family and friends of Pyro70.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

brokenwings
Posts: 113
Joined: Mon Jan 07, 2019 1:50 am

Re: We've lost Ben (Pyro70)

Postby brokenwings » Fri Mar 20, 2020 3:23 pm

I had to check... We lost Pyro (Matt) on 12/25/2019...
His obituary is on line...

I'm so sorry...
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy. Primary tumour still there.
Folfirinox: 6 cycles
CT Scan/PET Scan: ok for surgery
Surgery (CRS + HIPEC) 04/29: not optimally resectable, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin).
10/31/2019: Hipec + 6 weeks in hospital
12/30/2019: 27mm liver met

AmyG
Posts: 333
Joined: Tue Dec 25, 2018 8:08 pm

Re: We've lost Ben (Pyro70)

Postby AmyG » Fri Mar 20, 2020 3:42 pm

Oh my goodness. I had no idea. I'm actually at a loss for words.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...

Lee
Posts: 6027
Joined: Sun Apr 16, 2006 4:09 pm

Re: We've lost Ben (Pyro70)

Postby Lee » Fri Mar 20, 2020 5:01 pm

brokenwings wrote:I had to check... We lost Pyro (Matt) on 12/25/2019...
His obituary is on line...

I'm so sorry...


I am so sorry to read this. I too am at a loss for works.

brokenwings, could you give us a link to his obituary.

My thoughts and prayers are with his family and friends.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

brokenwings
Posts: 113
Joined: Mon Jan 07, 2019 1:50 am

Re: We've lost Ben (Pyro70)

Postby brokenwings » Sat Mar 21, 2020 3:13 am

DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy. Primary tumour still there.
Folfirinox: 6 cycles
CT Scan/PET Scan: ok for surgery
Surgery (CRS + HIPEC) 04/29: not optimally resectable, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin).
10/31/2019: Hipec + 6 weeks in hospital
12/30/2019: 27mm liver met

DarknessEmbraced
Posts: 3428
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: We've lost Ben (Pyro70)

Postby DarknessEmbraced » Sat Mar 21, 2020 10:37 am

How very sad! :( My deepest condolences to his friends and family.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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