Me again, my fave topic: CEA

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Claudine
Posts: 298
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Me again, my fave topic: CEA

Postby Claudine » Wed Mar 11, 2020 12:03 pm

But monotonic increases for 3 months isn’t a spike, it’s a trend. Nothing to do but wait for the next scan.


We're definitely in the same boat. DH's CEA reached a low of 3.2 in July then slowly but steadily increased... Yet the scans showed stability/slight decrease in his tumors (at least up to the last one back in December).
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT radiation 04/18, SBRT 02/19
Resection small intestine 05/18 (no cancer found - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin since 03/19
6.7 cm left adrenal mass 03/19, 3.67 cm 12/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 7.6
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: 2 calcified granulomas, one 1mm stable nodule

stu
Posts: 1299
Joined: Sat Aug 17, 2013 5:46 pm

Re: Me again, my fave topic: CEA

Postby stu » Wed Mar 11, 2020 4:32 pm

My mum’s CEA always trended upwards on chemo . Scans said significant shrinkage at the time . It was just the chemo .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Koreysue
Posts: 144
Joined: Mon Apr 30, 2018 2:36 pm

Re: Me again, my fave topic: CEA

Postby Koreysue » Thu Mar 12, 2020 2:15 am

ginabeewell wrote:
Koreysue wrote:
I sometimes wish I could just tell my doc I want to do every
6 mos for cea instead of 3 months, but I’d probably worry about that choice, too
Ugh!
You are right, it is a measly rise.
Thanks for the input,
Ksue


I stress about mine too. I went from 0.8 to 1.4 and freaked out for weeks stressing about it. I was almost afraid to ask for my next results, but they came back at 1.3 and I breathed again.

At the time I mentioned to the doctor I was close to asking her to just not push my CEA results into the portal. “Don’t tell me what they are unless / until you think there’s an issue.” If your doctor was willing, might be an ask you could make?


You know- that is a very good suggestion
Thanks
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8 :| My dr. wasn’t concerned, but I asked for a retest in 1 month

Koreysue
Posts: 144
Joined: Mon Apr 30, 2018 2:36 pm

Re: Me again, my fave topic: CEA

Postby Koreysue » Thu Mar 12, 2020 2:18 am

Claudine wrote:
But monotonic increases for 3 months isn’t a spike, it’s a trend. Nothing to do but wait for the next scan.


We're definitely in the same boat. DH's CEA reached a low of 3.2 in July then slowly but steadily increased... Yet the scans showed stability/slight decrease in his tumors (at least up to the last one back in December).


Ugh! It’s so frustrating. I wish there was a better test, or as Gina suggested that they wouldn’t even share the results unless they felt there was a problem.
Hoping all the best for your husband,
Ksue
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8 :| My dr. wasn’t concerned, but I asked for a retest in 1 month

User avatar
wwroam
Posts: 760
Joined: Sun Apr 06, 2008 8:13 pm
Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
Contact:

Re: Me again, my fave topic: CEA

Postby wwroam » Fri Mar 20, 2020 12:25 am

I was a smoker so my CEA was elevated at 4,0-4.3, fairly stable.
March 2017 it rose to 6.1
Oncolgist had me off for a PET scan. Tumor activity.
EBUS biopsy confirmed NSCLC and a new chapter of chemo began.
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15


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