beach sunrise wrote: .. I am worried since cea and inflammation is still high that maybe something was missed/not caught on scans I've had so far. Any thoughts?
Yes, I have the same thoughts, given what you have written in your signature.
Your initial staging was set at T3N0M0 (i.e., Stage 2A) while at the same time you had a very high CEA. It seems to me that you were understaged at the outset. With a CEA that high, you would expect metastatic involvement, either at the local level or remote level (with at least N1 or M1, or both, but not with N0M0 which would signify a total absence of any level of metastatic involvement.)
I don't think a T3 primary tumor would generate a CEA that high. Normally, I think CEA elevations in the high double-digit range are linked with metastases, not with primary tumor expression. That's my personal opinion. CEA is never used as an initial screening device since it has such a low validity in the context of primary tumors.
In my opinion, something went wrong at the very beginning when nothing was done to re-test CEA or to re-scan with higher definition scanners or with MRI, or PET/CT scan to resolve the inconsistency with the clinical staging. The initial scans should have detected the large, intrusive T4b tumor, but they didn't. The initial scans didn't detect the lymph node involvement, either.
I think it would help to have another set of scans done at a different facility to verify that there are in fact no detectable remote metastases in the liver, the lungs or elsewhere.
That's just my personal opinion.