Postby taexali » Fri Sep 25, 2020 5:40 pm
I had similar, but worse, symptoms one year after my ileostomy takedown, and they were caused by an abdominal adhesion, and I was hospitalized for two days.
The ER doctor told me that the scar tissue from the ileostomy was the source of the problem, and my intestines had closed up.
I had become careless with my diet, and something that I ate triggered the adhesion.
So, to minimize the problem recurring, I then only ate a very restricted diet of Ensures, bananas, avocados, thin soups, etc. for years.
I had to slowly discover over time what foods were safefor me to eat, and what were not.
I didn’t want to miss work again, so I became very paranoiac about what I ate; and the problem never reappeared.
Try the Ensures/Bananas diet for starters, and then, month by month, very carefully add “safe” foods to your diet.
After a year or so you can try to be more adventurous in your diet, but, if you have a colonic J-pouch, you must avoid getting constipated as this can also cause nasty intestinal problems.
Take your time with this, and be careful with your diet.
I hope that this works for you.
74 yr old male
Dx 7/11/2007 at age 60 Stage 4a rectal with mets to lung
8/2007 to 10/2007 - radiation + chemo
12/2007 - LAR + ileo
1/2008 to 10/2008 - chemo: oxaliplatin 7 sessions, then one chemo vacation to deal with a work-related priority, then 7 more oxaliplatin sessions. A total of 14.
11/2008 - ileo reversal
5/2009 - left lower lobectomy
11/2009 - hospitalized with severe abdominal pain caused by an adhesion (painful cramps + fecal vomiting)
10+ years NED
Male 77 yrs.
DX 7/11/2007 at age 61 with Stage IVa Rectal with mets to lung
8/2007 to 9/2007 Chemo (Fufa?) & Radiation
12/2007 LAR + Colonic J-Pouch + Ileo
1/2008 to 9/2008 Chemo (Oxaliplatin) 15 Sessions!
11/2008 Ileo reversal
5/2009 Left lower lobectomy, with two(?) lymph nodes removed.
11/2022 Still NED
01/21 Skin Cancer- ugh!