Tenesmus + Flat stools for 15 years... I'm Desperate!

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Siti
Posts: 269
Joined: Thu Aug 01, 2019 10:58 am

Re: Tenesmus + Flat stools for 15 years... I'm Desperate!

Postby Siti » Tue Mar 03, 2020 12:53 am

Sorry a little late with a reply. My husband had severe cramps and also in constant urge to evacuate — with the advice of some amazing folks here, this worked for him. Psyllium husk every morning (sometimes evening too if symptoms continues), proactively takes loperamide (Imodium) every morning up to 3 times a day on the days he’s on oral chemo, and Buscopan if he feels cramps are about to start. He finds being proactive works so he does it as part of his routine now.

There are some foods he can’t tolerate anymore, for example sashimi or large quantities of cheese or milk.
DH (54) DX on 5/7/19
Sigmoid|G3|LN:30/31|MSS|WT KRAS, NRAS, BRAF
7/19 PET distant LN para-aorta neck hip (0.5-1.5cm)
7/19 Lap resection
26/8 to 20/12/19 CAPEOX+Bev 7x
6/11/19 CT 3 cycle LN shrunk
1/20 Cap+Bev
4/20 TS-1+Bev due to bad HFS
NED 4 years
8/23 PET recurrence chest LN growing since Feb. CEA May(4.5>5.1>5.9)
9/23 Stopped Bev, CEA Sept(8.7) Radio 17x
11/23 PET 1+ supraclavicular LN, CEA (3.4>2.5)
12/23 Lymphadenectomy
1/24 Narrow margins, 1/5 +LN, 1.4cm +tissue, TMB (19)


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