So it's been about 4 months since I have my colostomy and overall I am happy with it, versus going the old fashion way and dealing with LARs...
Couple questions/suggestions for me.
1. Sometimes my colostomy is super active in the middle of the night, like from 1am to 6am and I can't sleep, I get concerned and keep getting up to clean it, because it never drops down even using lubricant, its a pain, but ok, but hurts my sleep.
2. Is there a way to slow it down from going so much? I know I could take immodium, but I get super nervous of blockage or something, is this safe?
Thats about it. Let me know your thoughts, the most annoying thing is that it just goes through out the day without really have one or two big movements and be done.
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
FolFiri 11/6 - 5 rounds
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
Maintenance Chemo begin 6/3/20 FolFiri