My husband and I STILL have not read the report from his LB done at Weill-Cornell this fall. Unfortunately, my husband's Weill-Cornell doctor went MIA as has not followed up with us. We do have a downloaded copy of the report which neither of us have opened.
We have much trepidation about doing so because the research still is evolving on the subject. A doctor on one of the fb groups said that LBs are not appropriate when dealing with residual disease (something to that effect). I know that small, skewed studies show pretty strong evidence that LBs that yield negative (no cancer-mutated cfDNA) results can be false negative (simply missed the cfDNA) but that a positive result invariable means recurrence will occur.
Dr. Kemeny says that LB results would have absolutely no impact on her treatment decisions. She only goes by visible evidence of disease. So, we have been just doing the quarterly scans, hoping no visible recurrence happens. If something pops up on a scan that is suspected to be new cancer, we will then open the report.
Thoughts?