Soccermom2boys wrote:Hi Marie—
I hope your husband is feeling better, figuring out what the issue is. I can share a few experiences from my own situation—I had the same surgery a little over four years ago. I don’t know how long his pain lasted or it’s specifics, but I absolutely recall the jarring, completely out of no where pain that I would get that first 4-6 weeks after surgery. While I never had any scans or special appointments to deal with it, I can almost guarantee it was due to adhesions from the surgery itself. Mine was always on my right side a little further past from where those drains were. APR surgery is for sure a major surgery and you are open for long enough that adhesions are a common development unfortunately. It is something to consider and at least inquire about. They would just come out of no where and be so painful and sometimes be just a few minutes of pain and other times last around an hour—generally not longer than that at any one time. I would never know what set them off, but damn they could take my breath away when one attacked. I would try to rub that area and warm it up with a heating pad, trying to loosen up the feeling. So while that may not be the issue, something to keep in mind as he heals.
The other experience I had about three months after the surgery and halfway through my 8 folfox treatments was an extremely painful case of gastroenteritis—basically an inflamed colon that was pissed from the chemo I guess. That brought me to my knees and the ER because I was in such pain I feared it was a dreaded bowel obstruction I had read about on here. After some heavy drugs to get past the pain and liquids only for 24 hours (and a CAT scan to show no obstruction), it was deemed only gastroenteritis and I was able to go home about 48 hours later thankfully, but that pain was beyond bearable and I couldn’t even get fluids in me when it started to progress and we went to the ER. That truly came out of nowhere as I felt fine/normal earlier in the day and progressively felt crampier so that by mid-afternoon I couldn’t take it anymore. Nothing to really do for that, just needed to do the liquid diet thing until we ruled out any bigger issues and then a low residue diet for several days afterwards to ease back in to eating. I also had my next chemo treatment delayed two weeks to give the colon a chance to calm down.
You said he is about two and a half weeks past the surgery. As frustrating as this early stage is in the recovery process for that surgery, he will turn a corner, but please tell him it will probably be a good 8 weeks before that happens. Just tell him to truly be in the moment, one day at a time. I just personally judged my recovery from that surgery by how I felt when I stepped out of bed each morning—as long as I didn’t feel worse than the day before I defined that as progress in the right direction. Keep us posted on what it turns out to be. I have my fingers crossed for him that in the big scheme it turns out to be on the benign side.
Marie25 wrote:Everyone thank you! We just made it back home an hour ago and his pain is gone. He ended up passing some stool and gas and bam no more pain. So he will be taking some milk of magnesium and miralax for awhile to make sure he doesn't get bound up again! I have had so many questions here and I hope one day I can go from question asker to giving answers. This forum is truly the best.
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