Trying wrote:Today my dr. Told me that he reviewed my file for the second time with a board of oncologists and they all agree I will never have surgery. He said at the beginning he thought it was possible as the oxy knocked out 8 tumors but after a year and half of chemo and how tumors are and lymph nodes are responding it will Never happen surgery would kill me as it's through the lymph nodes and lymph nodes travel through the blood stream and they would basically have to take put all my blood and lymph nodes. ???? I haven't grown new cancerous lymph nodes. Please know we are getting our files out to other major hospitals in the usa. Please don't advise I go to a certain hospital because we are already going to be sending to the top ones including usa. Dont really want to hear "sorry to hear" because I don't want to read it and start crying. I Need stories of inpsiration
when you or someone you know of being told they couldn't have surgery after a year and a half of chemo as it would kill them and had a miraculous turn around or something.... or chemo being able to keep people alive for a very long time or being told such a death sentence and then being told otherwise. please know we are already contacting usa hospitals. I need to be at my babies graduation. That's all I ask. Please no negativity or telling me to accept it
I'm falling apart and so is my family
I Need you guys more than ever right now. Hollistic treatments anything ...positive stories to give me hope...please...even if it's just someone u heard about
My husband is at the edge of 2 years from diagnosis. We started locally and got a second opinion at Cleveland Clinic here in Ohio supposed to be #2 or at least pretty high on the list for the nation. They had us on a string and cut it 1 week before Christmas after 8 months of chemo they stuck him on a shelf with " ah just stay on chemo till you can't anymore" They gave him an expiration date all because he didn't fit in a neat box based on their data and their statistics.
We traveled to MSK of NY and we liked what they were selling but unfortunately couldn't afford it in the long run, plus we hated NY. We were totally on board with HAI but you know...
We pushed on without them and continued with our great "po-dunk" cancer center. They got us to a radiologist consult which STILL didn't quite pan out but put us in touch with a great SIRT doctor and it brought on searching and at Ohio State we found a doctor who didn't turn us away. A year and a half to the day just about my DH had a surgery that in 2018 we didn't think could/ would happen. He's had a partial colectomy and that HAI pump placement. Granted right now we have a love hate (more hate) with OSU right now. But we got here.
Head up, chug a long, the more you let the negative in the more it will eat you alive from the inside out. I know, I've been there. I took a diary of my first few months of denial and shock and wrote down all the things running through my mind that I couldn't say out loud and seemed like once they were on paper it was easier to dispel is from my mind. You don't want to hear "I'm sorry " etc grab this crap by the horns get angry at it, my hubby often trash talks his cancer. Don't let depression get you because that's when you'll start slipping down a slope that's is HARD to climb out of. Dont be a victim fight back mind body and soul and believe in what your fighting for.