Hi Wardward, I’m very sorry to hear the news about your brother. I hope this forum can give you both some support through this extraordinarily difficult time.
A few thoughts from my side:
1. Given the stage of his disease, your brother should be being treated by a palliative care team. This does not preclude future treatment, but is focussed on managing his symptoms and maximising his comfort. They can usually do a lot more than regular hospital doctors can. This may also mean his pain can be managed to the point that he can go home. I’d be asking for a palliative care referral.
2. Indeed from your description it does sound fairly advanced. When you say there is “no treatment left”, does this mean he has done a lot already? Even with late-stage CRC, some people can live for a significant period with reasonable quality of life if they respond well to first- or second-line treatment. If he has not had any treatment yet (eg chemotherapy) then you might want to consider a second opinion from a major cancer centre. His disease may still be considered ‘incurable’, but treatment could improve both his quality and quantity of life.
Hospitals will not typically allow alternative treatments to take place under their care as they have not necessarily been proven safe and many have risks and their own negative side effects. This exposes the hospital to potential liability, plus malpractice, ethical breaches, and funding issues for non-approved treatments. He may have more flexibility here if he transfers to hospice care, although many hospice facilities also don’t allow active treatment other than palliative care.
I believe the right-to-try laws in the US apply to experimental conventional treatments that have passed Phase I testing (human trials) but not yet received FDA approval. I don’t think these apply to alternative/supplementary therapies.
Good luck to you both,
Male 37; Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+
3 LN; 4 liver mets
pT3pN1aM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x6
3/19 - Liver resection
4-5/19 - 25 x pelvic radiation; complete met. response
07/19 - ULAR (robot), temp ileo, 1/27 LN
08/19 - Missed a liver spot
08-11/19 - FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 - Liver resection #2
02/20 - Ileostomy reversed