HELP its grown. Please I'm sick I can't breath

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BritinCanada
Posts: 14
Joined: Tue May 28, 2019 2:28 pm

Re: HELP its grown. Please I'm sick I can't breath

Postby BritinCanada » Sat Feb 08, 2020 3:09 am

Deep breath. You are ok and your baby is ok. Its perfectly ok go go and wake up your mum when you are struggling. It's ok for your little one to see you sad about you being sick, he's feeling sad too. This whole situation is wrong. Is there something you can think of that helps decrase your panic, make tea, bake, sew, go do it, it will calm you.

Do you have some anxiety meds? I was very resistant to taking something permanent but I founld something I can take in an emergency when I started to panic very helpful.

Although I really liked my oncologist I recently sought out another opinion. It doesn't hurt to ask. They might have ideas that haven't been considered. Take some time to sit down and study your care and what other options are.

We are all here for you.
Dx CRC July 2018 T4N2M1
Sucessfull surgery August 2018
12 rounds of Folfox. June 2019 begin folfiri
November 2019 begin cetuximab and irinotecan

Trying
Posts: 228
Joined: Sun May 13, 2018 10:11 pm

Re: HELP its grown. Please I'm sick I can't breath

Postby Trying » Sat Feb 08, 2020 11:52 am

Thank you all for the support. I have an appt in a few days. I will definitely ask more why I'm not able to have surgery. Hes saying the lymph nodes are too distant but why he didn't say that before my scan? He had previously said after my scan we could see a surgeon. I'm going to get some answers and contact other cancer centers thank you all for the advise and helpful words.

Nicole
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

DarknessEmbraced
Posts: 3418
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: HELP its grown. Please I'm sick I can't breath

Postby DarknessEmbraced » Sat Feb 08, 2020 5:39 pm

I'm so very sorry you're going through this Nicole!*hugs* I hope your appointment goes well and that you will get answers.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

boxhill
Posts: 471
Joined: Fri Apr 06, 2018 11:40 am

Re: HELP its grown. Please I'm sick I can't breath

Postby boxhill » Tue Feb 11, 2020 3:03 pm

You seem to be quite confused about your own case: what you have and where, what has been done and what hasn't, what the plan forward is, and so forth. That can't help but ramp up your anxiety.

I think that you need to take someone with you to your next visit, to listen and take notes, and prepare a written list of questions ahead of time. If you don't have copies of your scan and surgical reports and so forth you should get them, and review them carefully in order so that you can figure out what is going on. If that kind of thing isn't your strong point, can you get someone to help you?
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
Neulasta 6/28
7/18 CT NED
11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: many fails before Celebrex helps
12/23/19 CT stable


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