Twelve year old Niece has surgery tomorrow

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Twelve year old Niece has surgery tomorrow

Postby IAS » Tue Feb 04, 2020 11:55 pm

Hello all,
I'm at my friend's place right now at the time of typing this and we are all staying up before we make the four hour drive to the Mayo clinic at midnight tonight to check in my 12 year old niece for a Colectomy due to her progression of (FAP) and several precancerous polyps found (they say say she has so many that they can't count them all and it gets worse with each colonoscopy) the doctor said she didn't really want to consider it until she was at least 16 , but understood pushing the surgery forward to ease the stress and anxiety she is going through. And trust me the anxiety she is going through has caused her to wake up at night in just absolute tears and panic attacks. It's just not fair that a girl so young is dealing with something so adult and unfair. Me, my friend his wife, and my niece's mother spent na good two hours talking with her about this decision since it will quite literally and fundamentally change her, even though she is under 18 it is her body and we told her that this is her decision to make and we will all support her no matter what and thus here we are.

I'm just here to ask for your prayers for such a brave child.
Thank you all for your time.

Posts: 301
Joined: Sun Sep 27, 2015 11:29 am

Re: Twelve year old Niece has surgery tomorrow

Postby kandj » Wed Feb 05, 2020 3:15 pm

Praying for her!
wife to DH, dx 8/15 stage IV @36, numerous unresectable liver Mets
resection and HAI placed 12/15
Liver resection 5/19/2016 15-20 mets removed (surgeon lost count, but it hopeful he got it all!)
Recurrence 7/2017 4 Liver mets and one possible lung met
Radiation on liver Mets 12/17
Lung met 10/18
VATS on lung met 11/18 started xeloda
Chemo break 6/19-11/19 lung/adrenal gland recurrence 11/19
Adrenal ablation2/20 Robotic Assisted VATS 3/20 Xeloda again

Posts: 290
Joined: Mon Apr 24, 2017 7:26 am

Re: Twelve year old Niece has surgery tomorrow

Postby JJH » Wed Feb 05, 2020 3:21 pm

IAS wrote:...I'm just here to ask for your prayers for such a brave child...


Offering prayers today to St.Peregrine
"The darkest hour is just before the dawn" - Thomas Fuller (1650)

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Joined: Wed Nov 06, 2019 8:51 pm
Facebook Username: Paul Smith

Re: Twelve year old Niece has surgery tomorrow

Postby PaulSmarinecorps » Wed Feb 05, 2020 5:30 pm

Thinking of that poor baby!
37 yo male diagnosed 5-14-19
Stage 4 with liver met
6 rounds folfox
9-19 liver abl
9-19 lar surgery
10-19 positive margins
6 more rounds folfox

Posts: 218
Joined: Tue Nov 10, 2015 10:29 pm

Re: Twelve year old Niece has surgery tomorrow

Postby Soccermom2boys » Wed Feb 05, 2020 7:59 pm

Life really can be so unfair and just plain sucky sometimes! I will have your niece in my thoughts as she recovers from this surgery.

I am someone with a permanent colostomy so I just wanted to chime in to say have them check out the UOAA website for people of all ages and reasons for having an ostomy. There is a discussion forum on there specifically for just parents of young children with ostomies that could prove to be a lifeline as they all adjust. My best friend was diagnosed with FAP in her early 30s so a different experience in that she was at least an adult when all of this was thrown at her. She also had too many polyps to count, but thankfully none were cancerous so she has had no issues beyond the initial recovery from losing her entire colon. She has two daughters who are in their late teens/early 20s and they have been getting colonoscopies regularly for the past ten years or so as FAP is genetic. No signs yet for them, but that doesn’t get them off of the hook just yet either.

While it is not an ideal situation, please know she can go on to live a healthy life and do so many activities that a girl of her age should be able to, she will just need time to heal and adapt. Sending love and positive energy her way.
8/3/15 Went in with a hemorrhoid, came out with a tumor
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox

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Joined: Sun Dec 29, 2019 11:15 pm

Re: Twelve year old Niece has surgery tomorrow

Postby Malidosa » Thu Feb 06, 2020 9:05 am

Been thinking of your niece all day. Hope she is doing as well as can be. Sending virtual hugs.
Dx - Cecum mass - age 35
Stage 1 (T2, N0, M0) - CEA level - 0.5
26 nodes negative
Right Colectomy 1/16/20
Currently investigating a 3.2 cm adrenal mass

Deb m
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Joined: Tue Jan 14, 2014 10:08 am

Re: Twelve year old Niece has surgery tomorrow

Postby Deb m » Thu Feb 06, 2020 10:14 am

I will have her intentions in my rosary tonight.

Posts: 432
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Twelve year old Niece has surgery tomorrow

Postby Claudine » Thu Feb 06, 2020 10:46 am

I hope everything went well XXXXX
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 24.1
Scan 03/19: Multiple small lung nodules up to 5mm
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and residual tumor removal 05/20
Scan 09/20: nothing to report

Posts: 607
Joined: Fri Apr 06, 2018 11:40 am

Re: Twelve year old Niece has surgery tomorrow

Postby boxhill » Thu Feb 06, 2020 2:53 pm

Poor baby. I hope it goes well and it is smooth sailing for her from now on.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

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Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Twelve year old Niece has surgery tomorrow

Postby DarknessEmbraced » Sat Feb 08, 2020 6:53 pm

I'm so very sorry your niece has to have surgery so young!*hugs* I hope her surgery goes well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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