No more chemo?

Please feel free to read, share your thoughts, your stories and connect with others!
AlexandraZ
Posts: 171
Joined: Fri Aug 23, 2019 8:25 am

Re: No more chemo?

Postby AlexandraZ » Thu Mar 12, 2020 4:24 pm

Claudine wrote:
And just as we were planning our trip to MSK, I got an email from them saying they are not accepting International patients due to the corona virus. Such bad timing! Hopefully it blows over soon.


I was thinking about you and the travel ban from Europe... Just what you needed :(


I knoooowwww :shock: Well, as soon as this is over, we can head over there hopefully!
Boyfriend 28yo dx February 2019, CEA 70,480
Stage 4 CRC with multiple mets to liver & lungs
KRAS, NRAS, BRAF wild type, MSS
12x FOLFIRI + Vectibix
September 2019 CEA 210, 60% reduction in size, chemo break!

AlexandraZ
Posts: 171
Joined: Fri Aug 23, 2019 8:25 am

Re: No more chemo?

Postby AlexandraZ » Thu Mar 12, 2020 4:27 pm

stu wrote:Thinking of you . It sure is new territory with this virus .
Hope you get home safely and keep chemo going till this settles .
Stay safe ,
Stu


Yeah it's pretty crazy. Like a dystopian science fiction novel. Cancer or corona virus is manageable. But both?? :shock: Hoping we don't get stuck in Denmark when we need to travel for treatment. Best wishes to your mum too! I'm sure she'll be staying at home too?
Boyfriend 28yo dx February 2019, CEA 70,480
Stage 4 CRC with multiple mets to liver & lungs
KRAS, NRAS, BRAF wild type, MSS
12x FOLFIRI + Vectibix
September 2019 CEA 210, 60% reduction in size, chemo break!

stu
Posts: 1345
Joined: Sat Aug 17, 2013 5:46 pm

Re: No more chemo?

Postby stu » Thu Mar 12, 2020 5:13 pm

The speed of change is unsettling.
I took my mum out yesterday and got her food in for a while . A bit confined but her only thoughts are with people enduring treatment . It’s hard enough going through treatment without that added burden .

My husband is going to be on the frontline all suited and booted . Hose him down when he comes through the front door , and my youngest son is hoping he will be watching Netflix in bed !! What a bizarre time .
Denmark’s doing something right . We have similar numbers but had ten deaths .

Maybe it’s the safest place to be .

Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Siti
Posts: 150
Joined: Thu Aug 01, 2019 10:58 am

Re: No more chemo?

Postby Siti » Thu Mar 12, 2020 6:46 pm

Here’s a really good live tracker:
https://infographics.channelnewsasia.co ... 9/map.html

I think the big worry is the numbers today are not reflective of the true number of cases — which they predict is actually 20-100x of what’s reported today.

I didn’t want to subscribe to the panic but I did proactively stock up 2 weeks worth of food early this week. I wouldn’t have done it if it wasn’t for my husband’s condition.

Tomorrow is the results of his scan 2 months after stopping oxaliplatin. He’s still on maintenance chemo but I’m just so worried I couldn’t sleep the past 3 nights! Hoping and praying for good news.
Wife of DH (54) DX on 5/7/19
CEA value: 1.2
T loc: Sigmoid
T type: Adenocarcinoma
T grade: G3
Pos LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 9
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!!

Claudine
Posts: 356
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: No more chemo?

Postby Claudine » Thu Mar 12, 2020 8:12 pm

That was me last night, Siti. I really hope you get good news tomorrow !
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT radiation 04/18, SBRT 02/19
Resection small intestine 05/18 (no cancer found - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 7.6
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: one 1mm stable nodule
PET 04/20 small uptake by L4
L3-L4-L5 fusion surgery and residual tumor removal 05/20

AlexandraZ
Posts: 171
Joined: Fri Aug 23, 2019 8:25 am

Re: No more chemo?

Postby AlexandraZ » Sat Mar 14, 2020 4:41 am

Wow, crazy times indeed. I hope you all are coping all right. In a way it feels like we (caregivers and patients) are freaking out LESS than the rest of the population, although we are the ones who actually have something to worry about. It's funny, I feel like the worst thing has already happened so there's not much that can really phase me anymore :lol:

Yesterday the Danish government announced that they are closing the borders today at noon. They are also urging all Danes to come home ASAP. For a second there I thought I might be denied entry, because technically I'm Swedish (after my mother) although I was born and raised in Denmark. But luckily you get to come home if you live or work in Denmark. Jesper wants to stay here till our planned return on Tuesday, so he gets all his scheduled oxygen treatment. It helps him a lot with chemo side effects so I don't blame him! I think we'll just take it day by day.

Stay safe everyone! And best wishes to you and your husband, Siti. Looking forward to your update <3
Boyfriend 28yo dx February 2019, CEA 70,480
Stage 4 CRC with multiple mets to liver & lungs
KRAS, NRAS, BRAF wild type, MSS
12x FOLFIRI + Vectibix
September 2019 CEA 210, 60% reduction in size, chemo break!

stu
Posts: 1345
Joined: Sat Aug 17, 2013 5:46 pm

Re: No more chemo?

Postby stu » Wed Mar 18, 2020 3:30 am

Hope you got home safely . Thinking of everyone and hope your keeping your heads above water with all the chaos going on around us .
Mum has used her same strategy she used with cancer on her social isolation . An initial gasp at the enormity of it but quickly aligned to accepting it for the greater good of the more vulnerable in our community.
Hope you are all staying strong and take special care .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 24 guests