Mohrfamily wrote:I get the impression from the new surgical oncologist that OSU wasn't monitoring DH right, if at all. This is so frustrating. DH has been pretty tight lipped, makes me feel like he might be blaming me or maybe it's my own guilt I can't help but feel. I ask him what he's thinking because there's a lot going on he always says nothing with a half hearted smile.
First of all, your DH should not be blaming you. You are supporting him in the best way you know how. And please don't feel guilty! Cancer is hard enough on everyone -- the patient and the caregiver -- without second-guessing the hard decisions that have to be made. All any of us can do is get the best information we can, make the best choice for us, and then see what happens. Don't let guilt eat you up. You are incredibly supportive to him! (((Hugs)))
It certainly sounds like OSU dropped the ball on HAI pump follow-up care. I would contact their "Patient Representative" (or whatever they call it at OSU) and file an official complaint. Then they will investigate it and see what happened. They may be able to come up with a plan to reposition the pump if that's the issue. The definitely owe you an explanation.
I agree with the others about thinking twice before removing the pump. If it was "inexpertly" implanted, or if it moved around for some reason, a surgeon might be able to correct the situation. But there is no correction
if the pump is the only thing that will kill his liver tumors and it is removed.
You also need to find out what's causing the ascites (fluid in the abdomen). That could be related or not.