Claudine wrote:This is nuts! Did they give you a reason for this?
Would they approve Avastin instead? it's not the same thing, but has been shown to do a better job on mets than Folfiri alone.
Mohrfamily wrote:Just got confirmation: FOLFIRI starts next week but the insurance will not approve vectibix. The hits just keep coming.
ginabeewell wrote:Mohrfamily wrote:Just got confirmation: FOLFIRI starts next week but the insurance will not approve vectibix. The hits just keep coming.
Ugh was so sorry to read the update. Vectibix was awful for me but it sure did a number on my mets, so I think you are right to keep pushing for it. I cannot think of why insurance wouldn’t approve unless his genetic type is the type that doesn’t respond to it (which his doctor would know so guessing that's not the case).
Good luck, will be pulling for you.
Mohrfamily wrote:So my hubby got more details on the scans, it's showing fluid in his abdomen and that there pump doesn't seem like it's in the right place.
Mohrfamily wrote:I get the impression from the new surgical oncologist that OSU wasn't monitoring DH right, if at all. This is so frustrating. DH has been pretty tight lipped, makes me feel like he might be blaming me or maybe it's my own guilt I can't help but feel. I ask him what he's thinking because there's a lot going on he always says nothing with a half hearted smile.
boxhill wrote:Sounds like it's time to go straight to MSK and find out what the hell is going on.
Far from an expert here, but I had the impression that the pump with FUDR is supposed to work in tandem with systemic chemo, and for some reason your H was left off of systemic chemo for months, and his HAI pump has apparently not been managed correctly by the locals.
Before acting impetuously, he should go to the experts at MSK and see if he can get back on track.
And this business of blaming you is completely out of line. I don't mean to be mean, but it is time that he take responsibility like a grownup and stop acting out, burying himself in denial, etc. He owes it to you, the rest of your family, and himself.
Am I overstepping? Maybe, but I have Stage IV disease myself, so maybe I get to just say it.
My best to you and your family.
boxhill wrote:Sounds like it's time to go straight to MSK and find out what the hell is going on...
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