Surgery tomorrow! Need positive vibes

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Deb m
Posts: 554
Joined: Tue Jan 14, 2014 10:08 am

Re: Surgery tomorrow! Need positive vibes

Postby Deb m » Tue Jan 21, 2020 9:09 am

Give yourself time. Every day will get a little bit better. I sometimes think it's the stress of everything that can wear you down more than the surgery. Just try an relax and things will get back to normal.

Praying for your recovery and good pathology results!

Deb

Supportivechild
Posts: 24
Joined: Thu Dec 26, 2019 12:45 am

Re: Surgery tomorrow! Need positive vibes

Postby Supportivechild » Tue Jan 21, 2020 7:38 pm

I hope you start to feel better soon. Have you been released to go home? Did your doctor say what the next step is?

Jay
Caregiver of mother 56
12-13-19 DX Rectal Cancer
5 CM Mass
T1N1M0
2 suspicious lymph nodes 7x4mm 5x3 mm
Abdomen/Pelvis CT
MRI Rectal Screening
Chest CT
PET SCAN

Malidosa
Posts: 35
Joined: Sun Dec 29, 2019 11:15 pm

Re: Surgery tomorrow! Need positive vibes

Postby Malidosa » Tue Jan 21, 2020 8:03 pm

Supportivechild wrote:I hope you start to feel better soon. Have you been released to go home? Did your doctor say what the next step is?

Jay


Yes I’ve been home for 2 days now. Just have a lot of soreness in my back. I think I’m over compensating for not wanting to strain my stomach muscles. I follow up with my doctor this coming Friday.
Dx - Cecum mass - age 35
Stage 1 (T2, N0, M0) - CEA level - 0.5
26 nodes negative
Right Colectomy 1/16/20
Currently investigating a 3.2 cm adrenal mass

boxhill
Posts: 470
Joined: Fri Apr 06, 2018 11:40 am

Re: Surgery tomorrow! Need positive vibes

Postby boxhill » Thu Jan 23, 2020 9:01 pm

Don't be a hero when it comes to pain meds. Try to walk around several times a day, even if it is inside the house. (When on the phone, for example.) I don't have any experience with back pain. what drove me nuts was the surgical staples. SO happy to have them out! :) But presumably that isn't as issue for you. See what you can do with gentle stretching, heat, etc to help your back.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
Neulasta 6/28
7/18 CT NED
11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: many fails before Celebrex helps
12/23/19 CT stable

Deb m
Posts: 554
Joined: Tue Jan 14, 2014 10:08 am

Re: Surgery tomorrow! Need positive vibes

Postby Deb m » Mon Jan 27, 2020 11:18 am

Good morning Malidosa,

How did your appointment go Friday.? Do you have pathology results yet?

Hoping all is well and your feeling better.

Malidosa
Posts: 35
Joined: Sun Dec 29, 2019 11:15 pm

Re: Surgery tomorrow! Need positive vibes

Postby Malidosa » Mon Jan 27, 2020 1:36 pm

Deb m wrote:Good morning Malidosa,

How did your appointment go Friday.? Do you have pathology results yet?

Hoping all is well and your feeling better.


Hi Deb, thanks for checking in. I spoke with my doctor on Friday about pathology. Feeling fortunate I was staged at stage 1. The mass was the size of a golf ball but only went through the first layer of the colon. She removed 26 lymph nodes and all came back negative.

As you can imagine a major weight was lifted. And I came out of the appointment with emotions I still didn’t really understand. Relieved but also feeling the overwhelming, I don’t know if it’s guilt or what knowing people come out of those appointments with worse news.

I still am trying to heal the fissure that started all of this, it’s such a pain in the ass literally but I believe it literally saved my life as much as I hate dealing with it. Because otherwise I wasn’t really experiencing any sort of real symptoms. I believe maybe my body was trying to tell me something was wrong on the inside.

My brother had his surgery on Friday which we are now waiting on his pathology. The whole experience for my family has been surreal.

At this time waiting to set an appointment with an oncologist who will monitor me for a while I’m sure. My ct scan did show a mass on my right adrenal gland which they are calling an incidental finding at this time cause it doesn’t seem to be associated with the Cancer, so one worry now shifts to another.

But again feeling very fortunate. And feeling thankful for you and your husband. His story was the first that I could find that seemed somewhat similar to mine so I will forever be grateful.
Dx - Cecum mass - age 35
Stage 1 (T2, N0, M0) - CEA level - 0.5
26 nodes negative
Right Colectomy 1/16/20
Currently investigating a 3.2 cm adrenal mass

boxhill
Posts: 470
Joined: Fri Apr 06, 2018 11:40 am

Re: Surgery tomorrow! Need positive vibes

Postby boxhill » Mon Jan 27, 2020 5:26 pm

Wow, that is really, really good news!

How refreshing to have someone staged at I! :D
I hope the fissure can be dealt with ASAP, and best to your brother, also.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
Neulasta 6/28
7/18 CT NED
11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: many fails before Celebrex helps
12/23/19 CT stable

Deb m
Posts: 554
Joined: Tue Jan 14, 2014 10:08 am

Re: Surgery tomorrow! Need positive vibes

Postby Deb m » Tue Jan 28, 2020 11:08 am

That is such great news! I do hope and pray that your brother has the same good outcome! As far as the adrenal gland thing. We'll just hope it's nothing to concerning.

Keep me posted on your brother's findings.

Because you and your brother have this, did they do genetic testing? Just a thought.

Once again , so happy for you.

God bless,

Deb

Deb m
Posts: 554
Joined: Tue Jan 14, 2014 10:08 am

Re: Surgery tomorrow! Need positive vibes

Postby Deb m » Tue Feb 04, 2020 1:23 pm

Any update on your brother's pathology?

Malidosa
Posts: 35
Joined: Sun Dec 29, 2019 11:15 pm

Re: Surgery tomorrow! Need positive vibes

Postby Malidosa » Tue Feb 04, 2020 11:53 pm

Deb m wrote:Any update on your brother's pathology?


Hey! Yes his turned out to be early stage 2. I believe he meets with his oncologist on the 14th to see what thoughts will be on further treatment.

I met with my oncologist today for the first time. He seems super thorough. He believes we might have lynch syndrome. They drew my blood for genetic testing today to find this out.

He told me in most cases of stage 1 I’d be done. But because of my adrenal mass he is ordering more blood work and scans. Said in his mind he’s treating it as cancer until the tests tell him otherwise. Which I’m glad he is being thorough but also trying not to panic about a possible second form of cancer in just a couple months time.

So my week has been filled with further MRI, Pet/ct scan and blood work. At this point praying nothing else will be found. I follow up with him on the 18th. So just a roller coaster of emotions.
Dx - Cecum mass - age 35
Stage 1 (T2, N0, M0) - CEA level - 0.5
26 nodes negative
Right Colectomy 1/16/20
Currently investigating a 3.2 cm adrenal mass

Deb m
Posts: 554
Joined: Tue Jan 14, 2014 10:08 am

Re: Surgery tomorrow! Need positive vibes

Postby Deb m » Wed Feb 05, 2020 9:43 am

I'm glad they are doing genetic testing. Do you and your brother have the same doctors?

Praying and hoping that the adrenal growth is not cancer and can be dealt with easily.

Keep me posted!

Claudine
Posts: 267
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Surgery tomorrow! Need positive vibes

Postby Claudine » Wed Feb 05, 2020 10:53 am

Isolated adrenal mets are uncommon in mCRC, but they happen (see my signature!). I really hope what the scan caught is just benign (quite common), but should it be otherwise, I’ve done a lot of research on them (which I’ll post in a new thread soon) and there are excellent treatment options these days. Still, hoping for a benign cyst (or just nothing, a glitch in the scan!).
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT radiation 04/18, SBRT 02/19
Resection small intestine 05/18 (no cancer found - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin since 03/19
6.7 cm left adrenal mass 03/19, 3.67 cm 12/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 10.2
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: 2 calcified granulomas, one 1mm stable nodule

Malidosa
Posts: 35
Joined: Sun Dec 29, 2019 11:15 pm

Re: Surgery tomorrow! Need positive vibes

Postby Malidosa » Wed Feb 05, 2020 1:17 pm

Claudine wrote:Isolated adrenal mets are uncommon in mCRC, but they happen (see my signature!). I really hope what the scan caught is just benign (quite common), but should it be otherwise, I’ve done a lot of research on them (which I’ll post in a new thread soon) and there are excellent treatment options these days. Still, hoping for a benign cyst (or just nothing, a glitch in the scan!).



Hey Claudine. Yes I’ve been freaking out naturally especially when you google adrenal cancer. Which I’ve had to stop. The size is 3.2cm according to my last ct scan in December.

My anesthesiologist for my surgery mentioned the possibility of it being a pheo due to my blood pressure spiking after surgery.

But I’ve had blood pressure issues and sort of what I thought was panic attacks that started about 6-7 years ago. So I’m assuming this mass is what’s been messing with my blood pressure. The panic attacks stopped around 2 years ago. So who knows what’s going on. He told me adrenal cancer is very rare he said maybe like a 5% chance. But he said if he saw a suspicious box on an airplane he’d treat it like a bomb until proven otherwise. So told me not to freak out but he was being cautious.

So anything right now you can give to ease my mind might be appreciated. Lol
Dx - Cecum mass - age 35
Stage 1 (T2, N0, M0) - CEA level - 0.5
26 nodes negative
Right Colectomy 1/16/20
Currently investigating a 3.2 cm adrenal mass

Claudine
Posts: 267
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Surgery tomorrow! Need positive vibes

Postby Claudine » Wed Feb 05, 2020 2:19 pm

I wouldn't think of adrenal cancer, but a metastasis from your colon caner to the adrenal gland; that's a BIG difference! Adrenal mets are very treatable.
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT radiation 04/18, SBRT 02/19
Resection small intestine 05/18 (no cancer found - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin since 03/19
6.7 cm left adrenal mass 03/19, 3.67 cm 12/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 10.2
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: 2 calcified granulomas, one 1mm stable nodule

Mohrfamily
Posts: 242
Joined: Tue May 22, 2018 4:04 pm

Re: Surgery tomorrow! Need positive vibes

Postby Mohrfamily » Sun Feb 09, 2020 5:29 pm

I hope everything went well for you! An important note don't forget to do mop up chemo. My DH swept it under the rug (he still gets chemo into his hepatic pump ((liver dominant as nt crc)) and we are realizing that wasn't very smart.

I knew but he is stubborn. Pain is temporary and before toy know it it's a memory. Best of luck.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed no surprises in surgery


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