COMING OUT!!!!!

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Mrned82
Posts: 15
Joined: Wed Jan 08, 2020 6:38 am

COMING OUT!!!!!

Postby Mrned82 » Wed Jan 08, 2020 7:06 am

Hi beautiful people,
I am Daniele, father of two beautiful girls and husband of Valentina (of whom, for my safety I will not reveal the age :D ).
Born in Rome 37 years ago, coffee lover, traveller, tremendous dancer and bad writer.
5 years ago we decided to move to Manchester (uk), where I started working as a customer advisor for one of the biggest online car rental company .
Things were going great but one day .. on October 17th 2017 ... I was diagnosed with a fourth-stage colon cancer that was immediately described as incurable.
I will never forget that day.....I was sitting in a small room, in front of an oncologist that very nicely " :D ..I'm joking"..he was colder than ice.... gave me a deadline of 2 and a half years (if I was lucky).
I stood for a few moments unmoved, completely still as if I froze, then I began looking at my body and found nothing, no label, no expiration date, I looked at the DOC straight in his eyes and told him: " Ehy Doc, I'm not a yogurt I don't have an expiration date! "
From that day NO EXPIRATION DATE became my motto and my journey began.
After 15 rounds of chemo I was declared " operable " and had my liver and colon resection.
I`ve never been declared free of cancer and I'm still on treatment to keep things under control until is possible but its ok I can manage chemo quite well and have my "solo travel " around the world !!
remember always
NO EXPIRATION DATE !!!!!!
male 37- italy/uk
stage 4 colon cancer with liver/lung mets since 2017
folfiri + cetuximab
7/2018 liver resection
09/2018 colon resection
38 rounds of chemo ...and still going on....
NO EXPIRATION DATE

claudine
Posts: 809
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: COMING OUT!!!!!

Postby claudine » Wed Jan 08, 2020 11:54 am

I love it :D :D :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24

texazgal
Posts: 161
Joined: Fri Sep 28, 2007 4:40 pm
Location: central Texas

Re: COMING OUT!!!!!

Postby texazgal » Wed Jan 08, 2020 1:34 pm

"Bad writer"? I don't think so....... Love it, and congratulations on your attitude. May you keep on keeping on till you're an old man and ready to go. :)
DX rectal cancer Aug 04
Surgery Sept 04, perm ostomy, "BarbieButt" Sept 23, 04.
June 2019 stage 3 esophageal cancer
Aug. 2019 28 radiations, 5 chemo
Nov. PET shows original tumor and mets resolved, 2 new mets in liver and bone.
May 2020 port installed, started Folfox hope to do 12 rounds, cure not expected
Keytruda April 2021 8 rounds
scan showed small growth in tumors
Paclitaxol started summer 2021.
Scan July 30, 2021 showed small decrease in size of tumors in liver and bone

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: COMING OUT!!!!!

Postby stu » Wed Jan 08, 2020 1:36 pm

Brilliant. Love the “ no expiry date”.
Long may it continue .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: COMING OUT!!!!!

Postby juliej » Thu Jan 09, 2020 7:13 pm

Mrned82 wrote:remember always
NO EXPIRATION DATE !!!!!!

I love this line!

You are right, Daniele. No one truly knows our expiration date. You keep traveling, dancing, and enjoying your life to the fullest!

Thanks for the wonderful post!
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

User avatar
ANDRETEXAS
Posts: 662
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: COMING OUT!!!!!

Postby ANDRETEXAS » Fri Jan 10, 2020 9:39 pm

Continued good fortune on your battle. Stay positive and stay vigilant !!
2/10/14 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT

3/2/15 - Clean colonoscopy & port removed
3/4 - clean CT
9/21- clean CT

3/23/16 - clean CT

2/22/17- clean CT

3/21/18 - clean CT
4/1 - clean colonoscopy

3/11/19 - clean CT
9/23 - Five-year release - Annual visits now !

4/13/23 - clean colonoscopy

ONE DAY AT A TIME !

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: COMING OUT!!!!!

Postby DarknessEmbraced » Sun Jan 12, 2020 3:12 pm

That's a wonderful! :) I hope your chemo goes well!*hugs* No Expiration Date is a good moto!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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