COMING OUT!!!!!

Please feel free to read, share your thoughts, your stories and connect with others!
Mrned82
Posts: 13
Joined: Wed Jan 08, 2020 6:38 am

COMING OUT!!!!!

Postby Mrned82 » Wed Jan 08, 2020 7:06 am

Hi beautiful people,
I am Daniele, father of two beautiful girls and husband of Valentina (of whom, for my safety I will not reveal the age :D ).
Born in Rome 37 years ago, coffee lover, traveller, tremendous dancer and bad writer.
5 years ago we decided to move to Manchester (uk), where I started working as a customer advisor for one of the biggest online car rental company .
Things were going great but one day .. on October 17th 2017 ... I was diagnosed with a fourth-stage colon cancer that was immediately described as incurable.
I will never forget that day.....I was sitting in a small room, in front of an oncologist that very nicely " :D ..I'm joking"..he was colder than ice.... gave me a deadline of 2 and a half years (if I was lucky).
I stood for a few moments unmoved, completely still as if I froze, then I began looking at my body and found nothing, no label, no expiration date, I looked at the DOC straight in his eyes and told him: " Ehy Doc, I'm not a yogurt I don't have an expiration date! "
From that day NO EXPIRATION DATE became my motto and my journey began.
After 15 rounds of chemo I was declared " operable " and had my liver and colon resection.
I`ve never been declared free of cancer and I'm still on treatment to keep things under control until is possible but its ok I can manage chemo quite well and have my "solo travel " around the world !!
remember always
NO EXPIRATION DATE !!!!!!
male 37- italy/uk
stage 4 colon cancer with liver/lung mets since 2017
folfiri + cetuximab
7/2018 liver resection
09/2018 colon resection
38 rounds of chemo ...and still going on....
NO EXPIRATION DATE

Claudine
Posts: 225
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: COMING OUT!!!!!

Postby Claudine » Wed Jan 08, 2020 11:54 am

I love it :D :D :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT radiation 04/18, SBRT 02/19
Resection small intestine 05/18 (no cancer found - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin since 03/19
6.7 cm left adrenal mass 03/19, 3.67 cm 12/19, surgery scheduled for 02/11
CEA since 03/19: high 58, low 3.2, now 10.2
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: 2 calcified granulomas, one 1mm stable nodule

texazgal
Posts: 151
Joined: Fri Sep 28, 2007 4:40 pm
Location: central Texas

Re: COMING OUT!!!!!

Postby texazgal » Wed Jan 08, 2020 1:34 pm

"Bad writer"? I don't think so....... Love it, and congratulations on your attitude. May you keep on keeping on till you're an old man and ready to go. :)
DX rectal cancer Aug 04
Surgery Sept 04, perm ostomy, "BarbieButt" Sept 23, 04.
Dad passed '93 CC
DD 42 yo/w/2 polyps removed
June 2019 stage 3 esophageal cancer
Aug. 2019 28 radiations, 5 chemo
Nov. PET shows original tumor and mets resolved, 2 new mets in liver and bone.

stu
Posts: 1246
Joined: Sat Aug 17, 2013 5:46 pm

Re: COMING OUT!!!!!

Postby stu » Wed Jan 08, 2020 1:36 pm

Brilliant. Love the “ no expiry date”.
Long may it continue .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

User avatar
juliej
Posts: 3080
Joined: Thu Aug 05, 2010 12:59 pm

Re: COMING OUT!!!!!

Postby juliej » Thu Jan 09, 2020 7:13 pm

Mrned82 wrote:remember always
NO EXPIRATION DATE !!!!!!

I love this line!

You are right, Daniele. No one truly knows our expiration date. You keep traveling, dancing, and enjoying your life to the fullest!

Thanks for the wonderful post!
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

User avatar
ANDRETEXAS
Posts: 630
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: COMING OUT!!!!!

Postby ANDRETEXAS » Fri Jan 10, 2020 9:39 pm

Continued good fortune on your battle. Stay positive and stay vigilant !!
2014
2/10 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT
2018
3/21 - clean CT
4/11 - clean colonoscopy
2019
3/11 - clean CT
9/23 - Five-year release - Annual visits now !
Next colonoscopy - 2023

ONE DAY AT A TIME !

DarknessEmbraced
Posts: 3396
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: COMING OUT!!!!!

Postby DarknessEmbraced » Sun Jan 12, 2020 3:12 pm

That's a wonderful! :) I hope your chemo goes well!*hugs* No Expiration Date is a good moto!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Nmh70 and 33 guests