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Re: Suggestions for treatment facility for liver and lung mets

Posted: Fri Jan 10, 2020 2:47 pm
by AlexandraZ
Rock_Robster wrote:It’s a long flight but you’re welcome to come see my liver surgeon in Melbourne! He’s an awesome guy - has always approached me with curative intent, and has done two resections on me now (the second was pretty tricky too - deep, nudging the hepatic vein). I believe he does around 150-200 livers + pancreases per year. He’s also a major trauma surgeon which I like (I figure these guys can handle any surprises... surely a gunshot to the liver is about as hard as it gets!)

It’s not MSK, but at least even with flights and hotels you’re probably only looking at 10% of the cost. My in-laws have plenty of space for you too :)


You are too kind, Rob! I actually wrote your surgeon's office back in the summer when you gave me his contact info. I got an answer from his secretary who said that since he was so far away, we might want to visit a surgeon in Edinburgh (I think it was there, I should check). Thanks for reminding me! I honestly wouldn't mind the travel, but it sounded like they thought it was silly for us to come all that way. But it wouldn't hurt to send him Jesper's next scan and see what he says!

Re: Suggestions for treatment facility for liver and lung mets

Posted: Fri Jan 10, 2020 5:44 pm
by FightCRC
Please consider a consult with Dr. Yuman Fong at City of Hope. I've written a lot about him before, you can do a keyword search. Suffice it to say, his bona fides for liver surgery are unmatched.

I've seen patients at MSK get liver resection even in the setting of multiple lung mets. But I feel a little more confident about Dr. Fong in this specific case. Lung mets aren't ideal, but he's also not afraid of them. In the end, it's the liver that needs to be addressed most of all, so he will address that first. Deal with the lungs later. I've seen him do this for many, many patients. Best of luck to you and Jesper.

Re: Suggestions for treatment facility for liver and lung mets

Posted: Sat Jan 11, 2020 9:42 am
by Mrned82
Amazing!! That is very inspiring. And your liver has been clear since your resection? do you know how many mets you had in your liver?

yes it's still clear...before the chemo I had 5 liver mets and the biggest was 7cm....but I responded well to the chemo and eventually the mets were 2 and the others were only "death scar tissue"...

Re: Suggestions for treatment facility for liver and lung mets

Posted: Wed Jan 15, 2020 4:45 am
by AlexandraZ
FightCRC wrote:Please consider a consult with Dr. Yuman Fong at City of Hope. I've written a lot about him before, you can do a keyword search. Suffice it to say, his bona fides for liver surgery are unmatched.

I've seen patients at MSK get liver resection even in the setting of multiple lung mets. But I feel a little more confident about Dr. Fong in this specific case. Lung mets aren't ideal, but he's also not afraid of them. In the end, it's the liver that needs to be addressed most of all, so he will address that first. Deal with the lungs later. I've seen him do this for many, many patients. Best of luck to you and Jesper.


Thank you so much! Dr. Fong sounds promising for sure. I will contact City of Hope.

Re: Suggestions for treatment facility for liver and lung mets

Posted: Sun Jan 26, 2020 4:56 pm
by AlexandraZ
FightCRC wrote:Please consider a consult with Dr. Yuman Fong at City of Hope. I've written a lot about him before, you can do a keyword search. Suffice it to say, his bona fides for liver surgery are unmatched.

I've seen patients at MSK get liver resection even in the setting of multiple lung mets. But I feel a little more confident about Dr. Fong in this specific case. Lung mets aren't ideal, but he's also not afraid of them. In the end, it's the liver that needs to be addressed most of all, so he will address that first. Deal with the lungs later. I've seen him do this for many, many patients. Best of luck to you and Jesper.


I just wanted to let you know that I am in touch with Dr. Fong! I emailed him and he wrote me back within minutes. As soon as we get Jesper's next scan I'm sending all documents to him (as well as MSK and a handful of large European hospitals) and we will see what happens! Thanks again for the recommendation!

Re: Suggestions for treatment facility for liver and lung mets

Posted: Mon Jan 27, 2020 8:00 pm
by JulesW
I am a physician with colorectal cancer in remission. I would recommend Dr. Kemeny or another MSK colorectal cancer specialist for liver mets and Dr. Drewes in Coswig Germany for laser metastectomy if you have more than three or four lung metastases.
I did not have liver metastases but I had seven spots in my lungs which were removed by Dr. Drewes and NED for almost 11 months now. I check this site every few weeks or so.

Re: Suggestions for treatment facility for liver and lung mets

Posted: Tue Jan 28, 2020 5:17 pm
by AlexandraZ
JulesW wrote:I am a physician with colorectal cancer in remission. I would recommend Dr. Kemeny or another MSK colorectal cancer specialist for liver mets and Dr. Drewes in Coswig Germany for laser metastectomy if you have more than three or four lung metastases.
I did not have liver metastases but I had seven spots in my lungs which were removed by Dr. Drewes and NED for almost 11 months now. I check this site every few weeks or so.


Thank you very much! I have heard of Dr. Drewes and I am glad to hear your experience was positive. We live in Denmark so Germany is close. Hopefully he will be able to have a liver/colon resection soon, and then we can see Dr. Drewes about the lung mets afterwards. Best of luck to you, and congratulations on being in remission!

Re: Suggestions for treatment facility for liver and lung mets

Posted: Sun Feb 02, 2020 1:02 pm
by AlexandraZ
We got the results from his newest CT scan and it's stable. He's done 4 rounds of FOLFOX with Avastin. They only measure 4 tumors for comparison - one in each lung and one in each lobe of the liver. Two of them shrank by a millimeter, one grew by a millimeter and one is exactly the same. So I guess that's a pretty stable scan. I'm disappointed because of course we were hoping for more shrinkage. But glad there is no progression, because that means we can go ahead with our plans to go to MSK and get a surgical consult with Dr. Fong at City of Hope too.

If all else fails and no one will operate, we will go to Dr. Vogl in Germany who does microwave ablation of liver mets. But of course we'd prefer surgery.

Does anyone have any input or advice or similar experiences?