I am planning our next move and thought I would ask you all for recommendations. My boyfriend Jesper is on his third infusion of FOLFOX + Avastin with a scan scheduled after the 4th. His oncologist says he expects a stable scan. I plan to send Jesper's scans to several high-volume, reputable hospitals in Europe as well as getting a second opinion at MSK. I am gathering names and hospitals for my list of places to send his scans and any input would be greatly appreciated!
The main problem we have is that Jesper has MANY small lung nodules, which our oncologist says rules out surgery. What we want to do is find someone who will do a liver resection DESPITE his lung nodules, given a stable scan next time. We both think the concept of "chipping away" at the cancer when it is stable sounds logical and we have heard of many who have even been cured this way. But many surgeons won't operate in the presence of lung nodules. My ideal situation would be for Jesper to have a colon and liver resection, then probably more systemic chemo for the lungs and then do what we can to fight back the lung mets. I know his prognosis is not good, but we are willing to do ANYTHING and everything.
If no one will resect his liver, we will probably go to Dr. Vogl in Germany who does microwave ablation of liver mets. Dr. Drewes is an idea for YAG laser surgery on his lungs, but I think he has an 8-or-so upper limit for lung mets.
Anyway. What I am looking for is aggressive surgeons who are likely to look at Jesper and think "Wow, this young guy has been through all this chemo with such a great response, and still is so strong. Let's help him out!" You know? We are planning on getting a second opinion at MSK but want to send his scans to any and every centre/hospital that might accept him for surgery. Any recommendations?
Boyfriend 28yo dx February 2019, CEA 70,480
Stage 4 CRC with multiple mets to liver & lungs
KRAS, NRAS, BRAF wild type, MSS
12x FOLFIRI + Vectibix
September 2019 CEA 210, 60% reduction in size, chemo break!