Update as of 12/27/19

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Joined: Fri Apr 06, 2018 11:40 am

Update as of 12/27/19

Postby boxhill » Fri Dec 27, 2019 4:29 pm

CT scan on 12/23 same as prior two scans, according to my doctor. (I haven't seen the actual report yet.) Nothing visible at all but the same tiny (about 5mm) subcapsular liver node. Status of that node impossible to determine, but necrotic tissue is a good guess. So have I been NED since June? No one knows. Quite likely.

Decided to take a Keytruda break in hopes of improving quality of life. Knees, right wrist/hand, neck still inflamed, with limited range of motion and significant pain. Less pain in the hand/wrist with celebrex, others less obviously better. Knees worse this week, may have overworked them.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

Posts: 74
Joined: Wed Jul 10, 2019 4:42 am
Location: Japan

Re: Update as of 12/27/19

Postby MetastaticEquilibria » Fri Dec 27, 2019 6:44 pm

Great news about the CT scan!
M55 Stage 4 Japan
12/16 Tumor rect/sig jct
1/17 Resect T3N0M0+LVI
2-6/17 UFT+UZEL
7/17 Recurr.+2 liver mets
7-10/17 FOLFOX+Vectibix
11-12/17 FOLFOX+pelvic rad 60 Gy
1-7/18 FOLFOX+Vectibix
8-9/18 Liver protons 73 GyE
10-12/18 Xeloda+Avastin
2/19 New liver met
3/19 Liver protons 66 GyE
4/19 3 Lung mets
4-6/19 Vectibix
7-9/19 FOLFIRI+Cyramza
9/19 Biliary stent
10-11/19 Lonsurf+Avastin, new liver met
12/19 HAI (via port not pump)
CEA 1.4-223 now 96
CA19-9 2.8-258 now 258
RAS wild MSS MET+ TP53-
UGT1A1*28 homo

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