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Postby hart2hart » Tue Dec 24, 2019 2:58 pm

Pete just had his 5 year clear (hooray!) scan.
Dr Kemeny is talking about removing his Hai Pump and
Port. What’s involved in these procedures? A day visit?
Would love for all to let us know your experience. A message for all fighting this dreadful disease........
Keep fighting and know that Pete and I are so grateful we found the Colon Club as that’s how we found the
Wonderful Drs Kemeny and D’Angelica. We are forever
Thankful, Grateful and Blessed!
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 1/2020
Hai Pump/Port Removed - 1/2020

Posts: 433
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey


Postby Beckster » Tue Dec 24, 2019 3:29 pm

Congratulations! What a wonderful holiday gift!
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
LN: 0/24
LVI present
Surgical margins: clear
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda
6/17,12/17,6/18,12/18,6/19,12/19,12/20 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8 6/20 3.0 12/20 2.7
Clear Colonoscopy 10/17, 11/19 :D

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Joined: Thu Aug 05, 2010 12:59 pm


Postby juliej » Tue Dec 24, 2019 4:56 pm

I'm due for my HAI pump removal too!!! :D :D :D

They said it's just outpatient surgery (no overnight stay in the hospital). I believe they said it would take about an hour. The incision will be glued, not stapled. They leave a piece of the catheter in place (the tip that's in your artery) because they've learned that is safer than trying to remove it.

That's all I know so far. They will remove my port at the same time. I expect some bruising but they said I'll only need Extra Strength Tylenol for any pain afterwards.

It will be weird to go through TSA without setting off alarms or getting patted down. :roll: I'm so used to it by now that I just tell them I need to go through the whole body scanner instead.

Let me know when they've decided Pete's surgery date and maybe we'll be there at the same time!!!

Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

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Joined: Tue Apr 06, 2010 6:32 pm


Postby radnyc » Thu Dec 26, 2019 9:41 am

Mine was removed at five years. It was very easy, went home the same day. Was very glad to have the thing removed.
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15

Posts: 78
Joined: Thu Oct 25, 2018 6:22 pm


Postby cartech78 » Mon Dec 30, 2019 12:00 am

Congratulations!!! I gotta be honest, I never wanna have mine removed. Its the Medtronic too so it has to be serviced more then the Codman and thats a huge inconvenience but this thing literally saved my life and it will be hard for me to part with it when its time.
40 Y/o male
Dx 10/5/18 stage lV CRC
Sg colon
23 inoperable liver mets largest 4.5 cm
Colon resection 10/6/18 clean margins
Starting FolFox on 11/18
2nd opinion at MSK on 12/18
HAI pump installed on 3/6/2019 also found 20 more small tumors on liver scans missed
7/2/2019 MRI and CT show only 2 liver tumors visible and they are shrunk by 3/4
11/25/19- Liver resection at MSK- got out all cancer and am NED. More scans and mop up chemo to follow.
1 month Scan clear! Jun/20 scans still clear. Off chemo since 3/20

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Facebook Username: Dorothy McGrath


Postby cptmac » Fri Jan 03, 2020 1:44 am

I’m a 15+ year survivor so I no longer remember exactly when I had mine removed, but it was about a decade ago. It was non eventful AND I kept my pump. I have it displayed in a case for hockey pucks.

I was the second person to sign up for the trial I was on. I heard a lot of negative comments from people on this board about it. And they told me what their doctors thought. I also heard negative comments from doctors.

But now, here we are, with the pump showing a 67% success rate at the 10 year mark. I know it saved my life. So I kept it.

Mines a Medtronic Pump too.

And now, when I talk to doctors about it, they want to ask me a slew of questions.

I believe in the pump
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04

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