I rang the bell today.

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AmyG
Posts: 329
Joined: Tue Dec 25, 2018 8:08 pm

I rang the bell today.

Postby AmyG » Mon Dec 23, 2019 5:08 pm

Rung it three times: for those that were finished with their journey, those that were still on it and once for the folks that won't get the chance.

I'm unbelievably blessed to be where I am today. Here's to hoping 2020 is a totally cancer free year.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...

zephyr
Posts: 272
Joined: Thu Aug 18, 2016 7:31 am

Re: I rang the bell today.

Postby zephyr » Mon Dec 23, 2019 6:23 pm

Congratulations and HAPPY NED NEW YEAR! I'm so happy for you.
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, MSS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr/Jul-2019 Xeloda/Avastin, SBRT
Sept-2019 Stable! Continue Xeloda/Avastin

Gravelyguy
Posts: 282
Joined: Thu Jul 05, 2018 6:03 pm

Re: I rang the bell today.

Postby Gravelyguy » Mon Dec 23, 2019 8:52 pm

That is awesome news Amy. May it be a start to many years of NEDdom!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0
12/19/19 clear scans CEA 1.0 still NED!

User avatar
CRguy
Posts: 10093
Joined: Sun Feb 10, 2008 6:00 pm

Re: I rang the bell today.

Postby CRguy » Tue Dec 24, 2019 12:01 am

WORD AmyG

WORD !!!!!!

Love Peace and Harmony on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Punky44
Posts: 430
Joined: Mon Oct 01, 2018 4:29 pm

Re: I rang the bell today.

Postby Punky44 » Tue Dec 24, 2019 12:23 am

Congratulations Amy! Great news!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 2.1; 1.9; 2.6; 2.8
6/28/19 Reversal and port out
10/22/19: CT showed new nodules
1/28/20: CT showed nodules shrinking

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Claudine
Posts: 255
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: I rang the bell today.

Postby Claudine » Tue Dec 24, 2019 11:11 am

Fantastic!!! And thank you for the "extra rings" for those who are not out of the woods yet. Meanwhile, enjoy a fantastic holiday season!!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT radiation 04/18, SBRT 02/19
Resection small intestine 05/18 (no cancer found - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin since 03/19
6.7 cm left adrenal mass 03/19, 3.67 cm 12/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 10.2
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: 2 calcified granulomas, one 1mm stable nodule

User avatar
ginabeewell
Posts: 391
Joined: Wed Oct 24, 2018 10:30 am

Re: I rang the bell today.

Postby ginabeewell » Tue Dec 24, 2019 2:20 pm

Last chemo and NED - could not think of a better Christmas gift (or holiday, depending on what you’re celebrating)! Congratulations and I hope to be following in your footsteps in another 8-12 rounds...
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

MetastaticEquilibria
Posts: 74
Joined: Wed Jul 10, 2019 4:42 am
Location: Japan

Re: I rang the bell today.

Postby MetastaticEquilibria » Tue Dec 24, 2019 7:29 pm

Congratulations!
M55 Stage 4 Japan
12/16 Tumor rect/sig jct
1/17 Resect T3N0M0+LVI
2-6/17 UFT+UZEL
7/17 Recurr.+2 liver mets
7-10/17 FOLFOX+Vectibix
11-12/17 FOLFOX+pelvic rad 60 Gy
1-7/18 FOLFOX+Vectibix
8-9/18 Liver protons 73 GyE
10-12/18 Xeloda+Avastin
2/19 New liver met
3/19 Liver protons 66 GyE
4/19 3 Lung mets
4-6/19 Vectibix
7-9/19 FOLFIRI+Cyramza
9/19 Biliary stent
10-11/19 Lonsurf+Avastin, new liver met
12/19 HAI (via port not pump)
CEA 1.4-223 now 96
CA19-9 2.8-258 now 258
RAS wild MSS MET+ TP53-
UGT1A1*28 homo

stu
Posts: 1259
Joined: Sat Aug 17, 2013 5:46 pm

Re: I rang the bell today.

Postby stu » Tue Dec 24, 2019 7:52 pm

So pleased for you . I hope 2020 is full of good things for you .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Beckster
Posts: 412
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: I rang the bell today.

Postby Beckster » Wed Dec 25, 2019 5:44 am

Congrats! This is wonderful news! Santa came to you early!
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18, 6/19, 12/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8
Clear Colonoscopy 10/17, 11/19 :D

AmyG
Posts: 329
Joined: Tue Dec 25, 2018 8:08 pm

Re: I rang the bell today.

Postby AmyG » Wed Dec 25, 2019 11:26 am

You guys are just the best. <3
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...

User avatar
ANDRETEXAS
Posts: 632
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: I rang the bell today.

Postby ANDRETEXAS » Thu Dec 26, 2019 2:59 am

Way to go Amy...and stay vigilant ! and positive !
2014
2/10 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT
2018
3/21 - clean CT
4/11 - clean colonoscopy
2019
3/11 - clean CT
9/23 - Five-year release - Annual visits now !
Next colonoscopy - 2023

ONE DAY AT A TIME !

michelle c
Posts: 1890
Joined: Wed Dec 02, 2009 3:58 am

Re: I rang the bell today.

Postby michelle c » Thu Dec 26, 2019 6:40 am

Yay!! That’s great news!! May 2020 be a much better year for you. Wishing you good health and happy times with your family :)
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

boxhill
Posts: 457
Joined: Fri Apr 06, 2018 11:40 am

Re: I rang the bell today.

Postby boxhill » Thu Dec 26, 2019 8:57 pm

Congratulations, Amy! May you be NED forever. :)
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
Neulasta 6/28
7/18 CT NED
11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: many fails before Celebrex helps
12/23/19 CT stable

BritinCanada
Posts: 14
Joined: Tue May 28, 2019 2:28 pm

Re: I rang the bell today.

Postby BritinCanada » Sun Jan 05, 2020 6:05 pm

Congratulations Amy, that's amazing news. May 2020 (and always) be full of only happy and positive things for you and your family.
Dx CRC July 2018 T4N2M1
Sucessfull surgery August 2018
12 rounds of Folfox. June 2019 begin folfiri
November 2019 begin cetuximab and irinotecan


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