Hello All. I have been meaning to check in with you all for some time now. I hope that you are enjoying the holiday season. I was diagnosed with stage 3b colon cancer in September 2014. Most of the details should be in my profile. I can’t say that I am completely out of the woods (Five years with no recurrence) yet, but I am hopeful.
I was not able to get a CT scan in September 2019 (this would have been my fifth year CT scan). For my fourth year CT scan (Fall 2018) to monitor any cancer recurrence, a cyst was found on the dome of my liver. So, I had another CT scan months later to see if anything changed with the cyst. In that CT scan (early part of 2019), the original cyst was stable, but they found another suspicious cyst on my liver. So, I had another CT scan in June or July of 2019. Gratefully, that CT showed that there were no changes to those two cysts, and that there was no recurrence of colon cancer. None of the CT scans I have had since the surgery and chemo have showed colon cancer recurrence.
I will get another CT scan in June/July 2020. If that CT scan shows no colon cancer recurrence, no changes in the two cysts, no other cyst formation, and nothing else suspicious, I believe I will be released from the oncologist. The last colonoscopy (11/6/18) went well, no cancer and no polyps. The gastroenterologist said that I do not need another colonoscopy for 3 to 5 years. I am leaning toward 3.
Life is pretty good today. I do live with some pretty bad peripheral neuropathy in both of my feet. I use gabapentin, but it is not a cure for me. I am seeing a chiropractor now and he is using a tens unit and cold laser therapy on both of my feet. It seems to be helping. We will see how that goes.
I just want you all to know that I am wishing the best for all of you. This forum has been invaluable to me. I have learned so much from all of you and I have received so much support from all of you throughout this journey. I hope that I can provide a little hope to those who are in treatment now. Just try and take things one day at a time.
Checking In- Diagnosed in September 2014
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testing765
- Posts: 324
- Joined: Tue Aug 19, 2014 9:41 am
Checking In- Diagnosed in September 2014
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9
Re: Checking In- Diagnosed in September 2014
Glad you checked back in with such good news. Long may it continue.
Enjoy ,
Stu
Enjoy ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .
Re: Checking In- Diagnosed in September 2014
testing765 -
Thanks for checking in! And it's good to see that all the research you did five years ago has paid off.
Newcomers here might not realize it, but there was a time back then when you were termed the Stage III poster child because of all the intensive research you did to customize your treatment plan.
Best wishes for many more years to come!
Thanks for checking in! And it's good to see that all the research you did five years ago has paid off.
Newcomers here might not realize it, but there was a time back then when you were termed the Stage III poster child because of all the intensive research you did to customize your treatment plan.
Best wishes for many more years to come!
Re: Checking In- Diagnosed in September 2014
Life is pretty good today. I do live with some pretty bad peripheral neuropathy in both of my feet. I use gabapentin, but it is not a cure for me. I am seeing a chiropractor now and he is using a tens unit and cold laser therapy on both of my feet. It seems to be helping. We will see how that goes.
My husband also seems to be stuck on Gapapentin (for life?), so I will really appreciate your feedback on this treatment!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary
Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22
Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22
Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24
Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22
Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22
Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24
Re: Checking In- Diagnosed in September 2014
So happy that everything is going so well.
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