Accident with 5FU bottle

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rachelfromnyc
Posts: 46
Joined: Fri Oct 04, 2019 11:32 am

Accident with 5FU bottle

Postby rachelfromnyc » Sat Dec 07, 2019 11:23 am

I woke up on the day of disconnecting from the bottle and went to the bathroom and blew my nose. Then I saw there was blood on the sink, my shirt and the floor (ruined my bath mats too). At first I thought it was a nosebleed as I have been having issues with that on my current treatment regimen but it was too much blood for just a nosebleed. Then I saw that one of the connections in the tubing on the bottle came apart and that was the cause! Btw, I didn't feel pain or anything else. I also see that there is a trail of blood from the bedroom to the bathroom, nothing in the bed so it must have happened as I was getting up and not overnight as I was sleeping. Now I am panicking. I reconnected where it came apart and closed the two other clamps. I cleaned up as best as I could, got dressed and cabbed it to the hospital. I live close by so it was only 10 minutes or so and when I got there, I was seen right away. Thank goodness the bottle was empty at that point. The nurse told me that I should've wiped the connections with an alcohol pad before reattaching otherwise, I did the right thing in coming into the hospital immediately. But everything was ok in the end.

Anyone else have issues like this?
Dx May '19, one month after 37th bday
5/19: 3.4 cm tumor in transverse colon, distant lymph nodes, innumerable lung nodules
Moderately differentiated invasive adenocarcinoma
MSS, TMB 7.9, BRAF/KRAS wild
6/19 - 9/19: Folfox
10/19 - 2 new tumors in liver, switch to Folfiri w/ Avastin
3/20 - liver tumors no longer seen, primary tumor 0.9 cm, continue Folfiri w/ Avastin

boxhill
Posts: 585
Joined: Fri Apr 06, 2018 11:40 am

Re: Accident with 5FU bottle

Postby boxhill » Sat Dec 07, 2019 1:11 pm

I'm not familiar with the bottle type of pump, so no. The only time I had a strange thing happen with my pump was once when I looked down the next day and realized that blood had backed up into the line leading to the bag. I went straight in and they detached me, figured out how much 5FU I had left, what the pump time should be, and we started over. Had to add quite a lot of time to my on-pump phase, unhappily. But no free-flowing blood or 5FU fluid.

It turned out that this had happened to several people. Apparently there were several duds in that batch of pumps that did not pump hard enough to keep the 5FU flowing in, so the blood started to flow out.

I was pretty appalled when I looked down and saw blood in the line, how much worse it must have been to realize that you were bleeding all over the place. Congratulations on your presence of mind!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 CT NED
11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Suspend treatment

heiders33
Posts: 362
Joined: Sat Nov 04, 2017 11:08 am

Re: Accident with 5FU bottle

Postby heiders33 » Sat Dec 07, 2019 5:07 pm

I had an accident like that once, but it was the needle nicking a vein in my sleep. Thankfully the 5FU was done flowing, and I took a Lyft to the MSK urgent care and they checked it and disconnected it. It was scary to see all that blood though!
37 year-old female
May 2017: Dx rectal cancer T3N2M0
MSS, KRAS G12D
6/17: 28 days chemorad
9/17: LAR/loop ileostomy
10/17 - 2/18: XELOX six rounds
3/18: reversal
5/18: CT liver spot, blood counts normal
8/18: Abnormal PET, CEA 2.4
9/18: liver resection/HAI pump
10/18: Clear CT/sigmoidoscopy
10/18 - 4/19: 6MO FUDR/5FU
7/19 - Clear CT
9/19 - Clear colonoscopy/colonography
10/19 - Clear CT
11/19 - CEA 9.8, PET abnormal, confirmed local recurrence

Claudine
Posts: 397
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Accident with 5FU bottle

Postby Claudine » Mon Dec 09, 2019 4:52 pm

A few cycles ago, my husband had a bad coughing fit which, unbeknownst to him, disconnected his chemo pump. When he went to flush it (he removes it himself) he realized that he was injecting the fluid under his skin... Ended up going to the place where they install the pump, and they cleaned up the mess pretty easily.
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 4.4
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: one 1mm stable nodule
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and residual tumor removal 05/20

rachelfromnyc
Posts: 46
Joined: Fri Oct 04, 2019 11:32 am

Re: Accident with 5FU bottle

Postby rachelfromnyc » Thu Dec 12, 2019 1:25 pm

Thanks everyone for sharing your experiences. Guess this thing isn’t accident proof so have to be careful next time and check the connections. It’s unfortunate because I was finally getting comfortable/confident with the bottle. The first few treatments, I felt I just had to hang out at home all day. But the most recent treatment, the day before the bottle incident, I was out and about doing errands, taking the subway etc with no issues. Now I’m kind of scared and anxious to do it all over again next week.
Dx May '19, one month after 37th bday
5/19: 3.4 cm tumor in transverse colon, distant lymph nodes, innumerable lung nodules
Moderately differentiated invasive adenocarcinoma
MSS, TMB 7.9, BRAF/KRAS wild
6/19 - 9/19: Folfox
10/19 - 2 new tumors in liver, switch to Folfiri w/ Avastin
3/20 - liver tumors no longer seen, primary tumor 0.9 cm, continue Folfiri w/ Avastin

AmyG
Posts: 348
Joined: Tue Dec 25, 2018 8:08 pm

Re: Accident with 5FU bottle

Postby AmyG » Thu Dec 12, 2019 8:11 pm

My hospital gives you a little sling bag to put the pump in, did yours give you anything like that? Makes my pump a nonissue but I have to be careful with the tubing with 5 huge dogs and a very active 8 month old. He likes to pull on it. :shock:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

rachelfromnyc
Posts: 46
Joined: Fri Oct 04, 2019 11:32 am

Re: Accident with 5FU bottle

Postby rachelfromnyc » Wed Dec 18, 2019 6:49 pm

My hospital gives you a little sling bag to put the pump in, did yours give you anything like that? Makes my pump a nonissue but I have to be careful with the tubing with 5 huge dogs and a very active 8 month old. He likes to pull on it. :shock:


I have the standard issue black fanny pack. I wear it tight above my stomach but below my chest and it's not too bad especially when it gets close to being empty.

Thanks everyone for weighing in. Going in again for another treatment tomorrow so I'll just have to be super careful as this thing is not accident proof.
Dx May '19, one month after 37th bday
5/19: 3.4 cm tumor in transverse colon, distant lymph nodes, innumerable lung nodules
Moderately differentiated invasive adenocarcinoma
MSS, TMB 7.9, BRAF/KRAS wild
6/19 - 9/19: Folfox
10/19 - 2 new tumors in liver, switch to Folfiri w/ Avastin
3/20 - liver tumors no longer seen, primary tumor 0.9 cm, continue Folfiri w/ Avastin

AlexandraZ
Posts: 178
Joined: Fri Aug 23, 2019 8:25 am

Re: Accident with 5FU bottle

Postby AlexandraZ » Fri Dec 20, 2019 6:39 pm

Hope your infusion went well today Rachel! I'm sorry you had that scary experience.

Wishing you the happiest of holidays! Hopefully your side effects will be wearing off by Christmas Day!
Boyfriend 28yo dx February 2019, CEA 70,480
Stage 4 CRC with multiple mets to liver & lungs
KRAS, NRAS, BRAF wild type, MSS
12x FOLFIRI + Vectibix
September 2019 CEA 210, 60% reduction in size, chemo break!


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