7 Year cancerversary

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kiwiinoz
Posts: 1147
Joined: Thu Jan 03, 2013 11:44 pm

7 Year cancerversary

Postby kiwiinoz » Wed Dec 04, 2019 9:38 pm

Hi All
There seems to have been a recent wave of these so I thought I'd continue to trend.
7 years ago today I woke up from a colonoscopy to hear the words "you have cancer". This was followed up the next day with a CT Scan where I found out that I was stage IV with a lesion on my lung at the age of 39.
Like all, I was all doom and gloom, but I met some really good medical support teams, had some really good discussions with people on this board, listed about what I could do and currently, 7 years later I am still here NED at the age of 46.
I feel lucky, and privileged to still be this way when so many others that started of at a better place than I did are no longer here.
I appreciate this site so much and my best wishes extended to all that are undergoing active treatment, and those that are no longer getting treatment but still concerned with a recurrence.
Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

Punky44
Posts: 437
Joined: Mon Oct 01, 2018 4:29 pm

Re: 7 Year cancerversary

Postby Punky44 » Wed Dec 04, 2019 10:44 pm

Happy 7 years!!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 2.1; 1.9; 2.6; 2.8
6/28/19 Reversal and port out
10/22/19: CT showed new nodules
1/28/20: CT showed nodules shrinking

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

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CRguy
Posts: 10115
Joined: Sun Feb 10, 2008 6:00 pm

Re: 7 Year cancerversary

Postby CRguy » Wed Dec 04, 2019 10:45 pm

Mega Cheers and Harmony Kiwi

All our "versarys" are signs of hope for those who follow us
On the Journey

Best wishes moving forward
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Ehut
Posts: 220
Joined: Wed Sep 26, 2012 4:24 pm
Location: Algonquin, IL

Re: 7 Year cancerversary

Postby Ehut » Wed Dec 04, 2019 10:53 pm

Congrats Kiwi on another year of freedom! It's great to see others that appear to have beaten the terrible prognosis. Hoping you have many more cancerversaries to celebrate!
Dx 12/11 rectal stage IV w/ 6 mets to liver, age 35
4 cycles FOLFOX 12/11 to 2/12
short course radiation 2/12
rectal/liver resection 3/12, temp ileostomy
8 cycles FOLFOX/FOLFIRI 4/12 to 8/12
ileostomy reversal 10/12
port out 10/13
NED for 7+ years and counting!

Deb m
Posts: 557
Joined: Tue Jan 14, 2014 10:08 am

Re: 7 Year cancerversary

Postby Deb m » Thu Dec 05, 2019 11:54 am

What a great Christmas present for yourself and loved ones. So happy for you.!

stu
Posts: 1300
Joined: Sat Aug 17, 2013 5:46 pm

Re: 7 Year cancerversary

Postby stu » Thu Dec 05, 2019 5:29 pm

Such good news and it’s always good to hear . My mum also had a good scan . It’s really important for new people to hear that there is purpose in enduring treatment for a growing group of people .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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horizon
Posts: 1532
Joined: Tue Apr 12, 2011 10:10 pm

Re: 7 Year cancerversary

Postby horizon » Thu Dec 05, 2019 11:22 pm

My man! Sending you a high five from the other side of the world.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 8 years NED). Is this real life?

Marie25
Posts: 31
Joined: Tue Aug 20, 2019 9:32 am

Re: 7 Year cancerversary

Postby Marie25 » Fri Dec 06, 2019 10:42 am

Awesome news!!! :D
Supporter to my husband
Rectal adenocarcinoma
Folfox 8/2019
Short Course Radiation January 2020
Surgery January 2020
T3 N0 stage 2A
0/42 lymph nodes

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Rob in PA
Posts: 2001
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: 7 Year cancerversary

Postby Rob in PA » Fri Dec 06, 2019 11:07 am

You da' man Kiwi!!!

I'll crack open a cold tinnie tonight in honor of your versary :D :D

Cheers!
Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

stevieb
Posts: 405
Joined: Sat Feb 09, 2013 12:26 am

Re: 7 Year cancerversary

Postby stevieb » Sun Dec 08, 2019 3:33 pm

Congratulations!
Dx age 33
12/19/12 Stage IV liver/lung
1/14-2/28/13 Folfox
3/27/13 rectal/lung rst; temp ileo
7/11/13 liver res/ileo rev
9/30/13 - Folfox
11/13,2/21 NED
3/14 lung recur;6/16-VATS
7/14 5 bi lung mets
10&11/15 laser lung surg
2015 Colondar Model
12/15 5 lung met-folfiri
5/15 NED
11/15 2 lung mets; cryoablation
1/4/17 2 lung mets; cryoablation
NED as of 1/23/17

DarknessEmbraced
Posts: 3428
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 7 Year cancerversary

Postby DarknessEmbraced » Sun Dec 08, 2019 7:15 pm

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Jacques
Posts: 579
Joined: Sun Dec 28, 2014 10:38 am
Location: Occitanie

Re: 7 Year cancerversary

Postby Jacques » Wed Dec 11, 2019 3:39 am

kiwiinoz -

Thank you for checking in, and congratulations on your 7th cancerversary!

Also, I want to thank you for your many contributions to this forum in the past. You, along with Brownbagger, have made a lasting contribution to this forum with your monthly exercise and weight loss threads. These threads are truly a legacy to be valued and cherished.

There are many on this forum (myself included) who have benefited from these threads and owe a debt of gratitude to you for your insistence on keeping 'exercise' as the focus of our attention.

Take care, and best wishes for the years ahead.


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Atoq
Posts: 367
Joined: Wed Oct 25, 2017 9:31 am

Re: 7 Year cancerversary

Postby Atoq » Wed Dec 11, 2019 3:54 am

Congratulations! That’s really good news!

All the best


Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (suspect met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy , stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED

kiwiinoz
Posts: 1147
Joined: Thu Jan 03, 2013 11:44 pm

Re: 7 Year cancerversary

Postby kiwiinoz » Sun Dec 15, 2019 5:09 pm

Hi Jacques

I think I used exercise as a way of getting rid of stress and as a way of punishing my body for "deceiving me". If I could push my body, then not only would there be positive changes in my body, but according to a number of studies I read, it would possibly give you a greater chance of avoiding a recurrence, plus I always felt better after exercising no matter what. All that positive vibe etc, and at that time I needed positivity, and if that helped you and others then I am really glad.

I still exercise, more into marathons now but we are coming on to our summer and it has warming up, and we have started an extensive season of bush fires. I live in a state in Australia called New South Wales and there was about 150 fires around the state and Sydney (where I live) was covered in smoke for the best part of two weeks so I gave up my running and used my home gym to exercise.

I was inspired by Brownbagger and if I have helped others on the way I am simply passing on his legacy, which makes me happy.

I thank you very much for your comments, as they too made me happy.

Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

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juliej
Posts: 3098
Joined: Thu Aug 05, 2010 12:59 pm

Re: 7 Year cancerversary

Postby juliej » Mon Dec 16, 2019 5:08 pm

Kiwi, you've always been such a big source of inspiration to me and others on the board. Congrats on living every day to its fullest and celebrating 7 years! You are a badass!!! Cheers to many, many more! :D :D :D

kiwiinoz wrote:I still exercise, more into marathons now but we are coming on to our summer and it has warming up, and we have started an extensive season of bush fires. I live in a state in Australia called New South Wales and there was about 150 fires around the state and Sydney (where I live) was covered in smoke for the best part of two weeks so I gave up my running and used my home gym to exercise.

Fires are a problem on the west coast of the US too. I tried wearing an N-95 face mask during my runs but felt like I was suffocating. So far my solution has been to go up higher in the mountains since the fires are usually in the lower areas or near the coast. Above 6,000 feet there's no smoke, but on the other hand I'm in a very remote area so I have to be careful.

Do you use a treadmill or an elliptical at home? Do you wear different trainers (sneakers) than for an outside run?

Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1


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