I am currently doing 5 rounds of FolFIRI. I get the infusion on a Wednesday and get disconnected from the Pump on Friday. On the first day of infusion when I get home I throw up twice, 2nd day throw up twice or once, Friday throw up once and Saturday maybe throw up, but most likely not. I salivate and spit nonstop. I am fatigued and feel overall totally crappy.
I am going to tell you there is absolutely nothing you can do about it. I am a male. I tried Zofran, numerous times and it doesn't help. Your body is going to do what its going to do. Oh the other thing after the chemo has kind of run its course, I burn when I pee, like 1 week out and it hurts for two days doing it. The irritation/burn lingers, and it makes it hard to sleep. I also pee several times at night. After 5 days from Chemo things start getting better, but still not fun. Not to mention diarrhea.
Sorry I can't help you because I can't help myself. Your Oncologist is full of shit, because FolFIRI is harder then Folfox, its the next line of defense after trying FOLFOX. I did Folfox and my issues were jaw cramping first bite syndrome, cold sensitivity, nueropathy and thats it. Nausea was a non issue. Don't get me wrong FOLFOX sucked too. FOLFIRI seems worse though. I got 3 more rounds.
It's hard to eat/drink when doing chemo. You just don't want to eat/drink, but you have to force yourself too. Also on FOLFIRI my hair falls out on 2nd treatment, like clockwork. It doesn't thin, it falls out. So I have my wife shave me bald. I still look good LOL...FOLFOX my hair thinned, never fell out.
I hope she is almost done. Good Luck Buddy!! Sorry we are going through this.
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
FolFiri 11/6 - 5 rounds
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
Maintenance Chemo begin 6/3/20 FolFiri