8 year cancerversary

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Ehut
Posts: 218
Joined: Wed Sep 26, 2012 4:24 pm
Location: Algonquin, IL

8 year cancerversary

Postby Ehut » Sun Dec 01, 2019 10:22 pm

Hi everyone, just posting on the 8 year anniversary of my stage IV cancer diagnosis. It is incredibly humbling to realize how fortunate and blessed I've been, especially since seeing so many other colon clubbers succumb to the disease. I truly have much to be thankful for this week.

Quick update on my status... CT surveillance was ended last year, I have an annual CEA check, and assuming my colonoscopy next year goes well, I'll be on a 5 year schedule. My wife had a daughter almost 3 years ago and we are expecting a son in the next few weeks. Life has pretty much returned to normal for my family.

Blessings to you all!
Dx 12/11 rectal stage IV w/ 6 mets to liver, age 35
4 cycles FOLFOX 12/11 to 2/12
short course radiation 2/12
rectal/liver resection 3/12, temp ileostomy
8 cycles FOLFOX/FOLFIRI 4/12 to 8/12
ileostomy reversal 10/12
port out 10/13
NED for 7+ years and counting!

Punky44
Posts: 402
Joined: Mon Oct 01, 2018 4:29 pm

Re: 8 year cancerversary

Postby Punky44 » Mon Dec 02, 2019 2:09 am

That’s so amazing!

Congratulations on your anniversary and the upcoming birth of baby boy!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

stu
Posts: 1219
Joined: Sat Aug 17, 2013 5:46 pm

Re: 8 year cancerversary

Postby stu » Mon Dec 02, 2019 3:12 am

So good to read . Enjoy the new birth of your son . Just delighted that your here enjoying life .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Gravelyguy
Posts: 260
Joined: Thu Jul 05, 2018 6:03 pm

Re: 8 year cancerversary

Postby Gravelyguy » Mon Dec 02, 2019 7:07 am

That is so awesome! Enjoy your growing family every day!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

Melanie67
Posts: 1
Joined: Tue Jan 29, 2019 6:57 pm

Re: 8 year cancerversary

Postby Melanie67 » Mon Dec 02, 2019 12:56 pm

Congratulations. And thank you for posting. I am stage IV and it gives me hope to see cancerversary posts from others who are stage IV.
Dx 1/18 rectal stage IV w/ 3 liver mets, age 50
Wife, mother, and as of 9/20/19 grandmother
MSS
1/18 to 4/18 FOLFOX
5/18 radiation
6/18 rectal and liver resection and temp ileostomy
7/18 to 10/18 FOLFOX
11/18 three possible lung mets
12/18 ileostomy reversal
5/19 VATS one confirmed met
7/19 to ?1/20 Xeloda

Deb m
Posts: 517
Joined: Tue Jan 14, 2014 10:08 am

Re: 8 year cancerversary

Postby Deb m » Mon Dec 02, 2019 1:50 pm

That's such great news. Enjoy your growing family!

Megrmcd13
Posts: 12
Joined: Tue Aug 20, 2019 2:13 pm

Re: 8 year cancerversary

Postby Megrmcd13 » Mon Dec 02, 2019 2:28 pm

I’m waiting for my husband to finish his first colonoscopy after diagnosis and this is exactly what I needed to read today. Congrats!!!!

Siti
Posts: 97
Joined: Thu Aug 01, 2019 10:58 am

Re: 8 year cancerversary

Postby Siti » Mon Dec 02, 2019 3:24 pm

Very happy for you! You’re a role model to many of us. Thank you for coming back to share the good news :)
Wife of DH (54) DX on 5/7/19
CEA value: 1.2
T loc: Sigmoid
T type: Adenocarcinoma
T grade: G3
Pos LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 9
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!!

tater
Posts: 120
Joined: Wed Jul 19, 2017 5:53 pm

Re: 8 year cancerversary

Postby tater » Mon Dec 02, 2019 4:43 pm

Such great news and thanks for giving us hope.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18, 1.8 3/19, 2.5 6/19
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18
Small Spot on right ureter surgery 10/30/19 adhered to artery
Dec. 2 start 12 rounds FOLFIRI

jsbsf
Posts: 22
Joined: Sat Aug 24, 2019 6:01 am
Location: San Francisco

Re: 8 year cancerversary

Postby jsbsf » Mon Dec 02, 2019 10:45 pm

You are an inspiration and your very first post is one everyone here needs to read through:

viewtopic.php?f=1&t=40315&p=288270#p288270

I came here grasping for any hope I could find, and researched the supplements you told us you were taking way back then. I know we are all different and what worked for you might not work for everyone. My husband has been doing exceptionally well. The oncologist, chemo nurses, radiologists ... everyone are amazed.

I know we still have a long road ahead, but it is starting off so much better than either of us expected when we found out 3 months ago. We followed your guidance and things might be very different had I not come here and found your post.

Yours was the the most helpful of all the posts I have read and I do believe you have saved some lives.

Congratulations on reaching another milestone.
DH 61
2019
8/23 Colonoscopy, 5+cm mass. Baseline CEA:4.1
8/26 CT ~1cm liver met?
9/6 PET: liver spot
9/16 MSS. MRI: 2 liver mets: 2.7 & 7mm
9/23 Port
9/30 Start FOLFOX
10/4 Larger liver met ~3.7cm (raised concern), colon tumor stable.
CEA: 10/13,12.5;10/27,4.7;11/10,3.3; 11/24,3.1
11/5 both liver mets almost 2/3 smaller.

User avatar
CRguy
Posts: 10035
Joined: Sun Feb 10, 2008 6:00 pm

Re: 8 year cancerversary

Postby CRguy » Mon Dec 02, 2019 11:49 pm

Ehut wrote:Hi everyone, just posting on the 8 year anniversary of my stage IV cancer diagnosis. It is incredibly humbling to realize how fortunate and blessed I've been, especially since seeing so many other colon clubbers succumb to the disease. I truly have much to be thankful for this week.

Quick update on my status... CT surveillance was ended last year, I have an annual CEA check, and assuming my colonoscopy next year goes well, I'll be on a 5 year schedule. My wife had a daughter almost 3 years ago and we are expecting a son in the next few weeks. Life has pretty much returned to normal for my family.

Blessings to you all!


EVERY cancerVERSARY is worthy of celebration my friend :!:

WORD !!!

Please continue to be here to post the many posi++++vibes you already know you have !!!!

Love Peace and Harmony
on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Ehut
Posts: 218
Joined: Wed Sep 26, 2012 4:24 pm
Location: Algonquin, IL

Re: 8 year cancerversary

Postby Ehut » Tue Dec 03, 2019 11:58 am

jsbsf wrote:You are an inspiration and your very first post is one everyone here needs to read through:

https://coloncancersupport.colonclub.co ... 70#p288270

I came here grasping for any hope I could find, and researched the supplements you told us you were taking way back then. I know we are all different and what worked for you might not work for everyone. My husband has been doing exceptionally well. The oncologist, chemo nurses, radiologists ... everyone are amazed.

I know we still have a long road ahead, but it is starting off so much better than either of us expected when we found out 3 months ago. We followed your guidance and things might be very different had I not come here and found your post.

Yours was the the most helpful of all the posts I have read and I do believe you have saved some lives.

Congratulations on reaching another milestone.


Thanks for refreshing my memory of my first post all those years ago. I have since stopped taking all of the supplements except for the baby aspirin. I've had two follow up colonoscopies since I was NED and no polyps have been found. I sometimes wonder if my poor diet and more alcohol consumption (not heavy by any means though) back then caused my original polyps and cancer.
Dx 12/11 rectal stage IV w/ 6 mets to liver, age 35
4 cycles FOLFOX 12/11 to 2/12
short course radiation 2/12
rectal/liver resection 3/12, temp ileostomy
8 cycles FOLFOX/FOLFIRI 4/12 to 8/12
ileostomy reversal 10/12
port out 10/13
NED for 7+ years and counting!

Siti
Posts: 97
Joined: Thu Aug 01, 2019 10:58 am

Re: 8 year cancerversary

Postby Siti » Tue Dec 03, 2019 2:52 pm

Ehut wrote:Thanks for refreshing my memory of my first post all those years ago. I have since stopped taking all of the supplements except for the baby aspirin. I've had two follow up colonoscopies since I was NED and no polyps have been found. I sometimes wonder if my poor diet and more alcohol consumption (not heavy by any means though) back then caused my original polyps and cancer.


Did you change your lifestyle completely? I’ve been reading a lot about this and it seems like the whole whole foods / vegan diet is the best. What are your thoughts on this?
Wife of DH (54) DX on 5/7/19
CEA value: 1.2
T loc: Sigmoid
T type: Adenocarcinoma
T grade: G3
Pos LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 9
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!!

Ehut
Posts: 218
Joined: Wed Sep 26, 2012 4:24 pm
Location: Algonquin, IL

Re: 8 year cancerversary

Postby Ehut » Tue Dec 03, 2019 3:26 pm

Siti wrote:
Ehut wrote:Thanks for refreshing my memory of my first post all those years ago. I have since stopped taking all of the supplements except for the baby aspirin. I've had two follow up colonoscopies since I was NED and no polyps have been found. I sometimes wonder if my poor diet and more alcohol consumption (not heavy by any means though) back then caused my original polyps and cancer.


Did you change your lifestyle completely? I’ve been reading a lot about this and it seems like the whole whole foods / vegan diet is the best. What are your thoughts on this?


Honestly, I haven't made major lifestyle changes. My diet improved when I got married, but that was 3 years before I was diagnosed.
Dx 12/11 rectal stage IV w/ 6 mets to liver, age 35
4 cycles FOLFOX 12/11 to 2/12
short course radiation 2/12
rectal/liver resection 3/12, temp ileostomy
8 cycles FOLFOX/FOLFIRI 4/12 to 8/12
ileostomy reversal 10/12
port out 10/13
NED for 7+ years and counting!

kiwiinoz
Posts: 1133
Joined: Thu Jan 03, 2013 11:44 pm

Re: 8 year cancerversary

Postby kiwiinoz » Tue Dec 03, 2019 4:47 pm

Hi Ehut
Congratulations are due on many fronts, 1st the continued NED status, and then the growing family.
Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015


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