Did my first at home disconnect today.

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Joined: Tue Dec 25, 2018 8:08 pm

Did my first at home disconnect today.

Postby AmyG » Wed Nov 27, 2019 9:42 pm

Cycle 11, they held the oxiliplatin so I didn't need to drive 2 hours to the hospital for disconnect from the 5fu and get an on body injector!

It was super easy. No problems at all.

In other news, my hair is falling out by the handfuls again and it's really bothering me this time. :( It had finally started to grow back, about an inch long and I can already set the patchy spots. Looks like I'll probably have to shave it again. Lame.

But, last cycle is 12/9 so there's an end in sight!!

You guys have a happy Thanksgiving.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

Posts: 446
Joined: Mon Oct 01, 2018 4:29 pm

Re: Did my first at home disconnect today.

Postby Punky44 » Wed Nov 27, 2019 11:05 pm

Happy Thanksgiving Amy! Only 1 more chemo! You got this!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4
Latest update: 6/20–Clear CT; 9/22—CEA 2.4

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Posts: 6132
Joined: Sun Apr 16, 2006 4:09 pm

Re: Did my first at home disconnect today.

Postby Lee » Thu Nov 28, 2019 11:10 am

Congratulations on getting to almost the end of treatment, that is a major milestone. I had to disconnect once. Actually it was on Thanksgiving Day about 15 yrs ago. I did not want to delay treatment due to the holidays.

My hair did get thin, but never really lost it all. It was supper frizzie though. It was about 6 months out from treatment when my hairdresser cut it all off. It was easy to see where the frizzie ended. Hairdresser just cut above the frizzie. It will get better.

Happy Thanksgiving to you and your family.

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Posts: 178
Joined: Fri Aug 23, 2019 8:25 am

Re: Did my first at home disconnect today.

Postby AlexandraZ » Thu Nov 28, 2019 2:20 pm

Yay, you're almost done!! So happy for you, and only slightly jealous. Lol!

Jesper always disconnects his own 5FU pump and we live 15 minutes away from the hospital. I can't believe you had to drive all that way just to get it disconnected every time!

I understand the hair issue. I don't think I'd deal too well with losing my hair. But yes, it will be back!
Boyfriend 28yo dx February 2019, CEA 70,480
Stage 4 CRC with multiple mets to liver & lungs
KRAS, NRAS, BRAF wild type, MSS
12x FOLFIRI + Vectibix
September 2019 CEA 210, 60% reduction in size, chemo break!

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