Just need to get it out

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tminor5
Posts: 40
Joined: Wed Jun 13, 2018 11:46 am

Just need to get it out

Postby tminor5 » Tue Nov 26, 2019 11:27 pm

I’ve talked to my family and I’m pretty sure I’m just coming off my adrenaline rush. But I’m just sitting here crying so thankful my husband is ok. But I don’t want to bother my family this late at night.

His ileo takedown was Oct 25. His hip replacement was June 27. My husband hit a patch of ice tonight and rolled his car. He’s ok didn’t go to the hospital. But I’m so worried about him. We called the surgeon on the way home. He doesn’t sound to worried and told us what to watch for. He’s calling his ortho tomorrow just to make sure about his hip. It’s not bothering him or anything. He’s just a bit sore.

I don’t know why I’m sitting here by myself crying. I don’t know if after everything he’s been through then this. I just don’t know. I just worry I needed to take him to be checked out (mind you he was checked at the scene). I’m just worried because his seatbelt was over where all his surgeries have been. I don’t know.

Sorry it’s long. I just need to get it out I guess. And I figured most everyone here would understand what I’m worried about.
DH DX at 46  pT4a,pN1a CEA 1.6
5/25/18 ER bowel obstruction
5/26/18 Colonoscopy couldn't insert stint
5/27/18 Surgery removed 18", not seen on any near by organs, colostomy due to infection
6/25/18 1st FOLFOX (12 cycles)
11/26/18 Last chemo
12/17/18 Colonoscopy clear
3/29/19 Colostomy takedown (temp illeo because of scaring)
5/23/19 Scan (sm node lung believe scar tissue)
6/20-7/25-8/9-8/20-9/5-9/26 Colon stretch for illeo takedown
10/3/19 Scan (node same)
10/25/19 Ileo takedown

stu
Posts: 1355
Joined: Sat Aug 17, 2013 5:46 pm

Re: Just need to get it out

Postby stu » Wed Nov 27, 2019 4:10 am

I can understand why your sitting crying . It’s all be a bit too much and your only human.
Sounds as though he was very fortunate!
He will be sore tomorrow.
Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Siti
Posts: 155
Joined: Thu Aug 01, 2019 10:58 am

Re: Just need to get it out

Postby Siti » Wed Nov 27, 2019 4:20 am

It’s ok to cry, I think all of us here have been through that and continues to go through that. Sometimes I just cry out of the blue without any triggers because it’s all too much and overwhelming. Please do try to take care of yourself too.
Wife of DH (54) DX on 5/7/19
CEA value: 1.2
T loc: Sigmoid
T type: Adenocarcinoma
T grade: G3
Pos LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 9
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!!

zephyr
Posts: 290
Joined: Thu Aug 18, 2016 7:31 am

Re: Just need to get it out

Postby zephyr » Thu Nov 28, 2019 4:17 pm

Siti wrote:It’s ok to cry, I think all of us here have been through that and continues to go through that. Sometimes I just cry out of the blue without any triggers because it’s all too much and overwhelming. Please do try to take care of yourself too.


Same here. It sometimes doesn't take much. I think you can only internalize so much until your brain starts screaming for a relief valve. Tminor5, you are likely spot-on with your comment, everything he’s been through then this. Just when you think he's out of the woods and you can breathe again, this happens. Let the tears fall when you can. It will be cathartic and you need to let off some stress. In my home, I'm the patient and I'm certain that the caregiver (my husband) has the hardest job by far -- so give yourself a break. You can only do so much and it's your life too. You might consider counseling or a support group or a night out with the girls.
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, MSS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr/Jul-2019 Xeloda/Avastin, SBRT
June-2020 Mild progression, continue Xeloda/Avastin

boxhill
Posts: 555
Joined: Fri Apr 06, 2018 11:40 am

Re: Just need to get it out

Postby boxhill » Wed Dec 04, 2019 9:30 pm

So glad to hear that he had his seat belt ON, right?!?

It's no wonder you have an emotional release. After all that the two of you have been through, the thought of losing him to a random patch of ice would just be one thing too much. I hope he isn't too sore as a result and there aren't any lingering issues.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 CT NED
11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Suspend treatment

Punky44
Posts: 440
Joined: Mon Oct 01, 2018 4:29 pm

Re: Just need to get it out

Postby Punky44 » Thu Dec 05, 2019 12:15 pm

How is he doing now?
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3
Latest update: 6/20–Clear CT, normal CEA

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

tminor5
Posts: 40
Joined: Wed Jun 13, 2018 11:46 am

Re: Just need to get it out

Postby tminor5 » Thu Dec 05, 2019 3:18 pm

Thank you everyone. He was wearing his seat belt. Thank goodness he does every time he gets in a vehicle.

He never really got sore. He never had to go in. No concussion. He got really lucky.
DH DX at 46  pT4a,pN1a CEA 1.6
5/25/18 ER bowel obstruction
5/26/18 Colonoscopy couldn't insert stint
5/27/18 Surgery removed 18", not seen on any near by organs, colostomy due to infection
6/25/18 1st FOLFOX (12 cycles)
11/26/18 Last chemo
12/17/18 Colonoscopy clear
3/29/19 Colostomy takedown (temp illeo because of scaring)
5/23/19 Scan (sm node lung believe scar tissue)
6/20-7/25-8/9-8/20-9/5-9/26 Colon stretch for illeo takedown
10/3/19 Scan (node same)
10/25/19 Ileo takedown

Carboxo
Posts: 17
Joined: Sat Nov 02, 2019 5:10 pm

Re: Just need to get it out

Postby Carboxo » Mon May 25, 2020 11:07 pm

Hang in there.
DS: caregiver
42, female
DX: RC, Adenocarcinoma
G2: Moderately differentiated
pT1N1bM0 Stage IIIA
Positive lymph’s:, 2/15
Baseline CEA value 2.5
Tumor invades submucosa
Perineural invasion (PNI) present
Surgical margins: clear
MSS,KRAS/BRAF status: WT
LAR robotic, colectomy, with Ileostomy 9/4/19
Radiation therapy (if any): Chemo/rad scheduled next
Chemotherapy:XELODA,CAPEOX, started 10/28/19


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