Clustering & marshmallows

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teachpdx
Posts: 632
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Clustering & marshmallows

Postby teachpdx » Tue Nov 26, 2019 10:39 pm

Hi All,

I've been fighting clustering from the get go & was really starting to get annoyed on how it kept infringing on my life. Did a bit of research and came upon comments of people with ileostomies using marshmallows to slow down output so they could change their bags. I remembered that from early on and figured - why not?

So I got a bag of SMALL marshmallows and pop four before and after a meal (or a cup of coffee) and I have not had a clustering episode since. I don't particularly like marshmallows, so the small ones are easy to eat. Also, 18 small marshmallows is 100 calories and when I think of all the extra carbs I've eaten over the past few years to absorb problem foods (veggies) 100 calories is nothing.

Hope this helps someone - better than meds.

Peace and Happy Thanksgiving

Kristi
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

Gravelyguy
Posts: 260
Joined: Thu Jul 05, 2018 6:03 pm

Re: Clustering & marshmallows

Postby Gravelyguy » Wed Nov 27, 2019 10:55 am

Thanks teachpdx!

That is interesting info. I am doing pretty well but do get some late afternoon/evening clustering on occasion. Nice to have another thing to try!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

Phillypatient
Posts: 32
Joined: Sun Aug 05, 2018 11:28 am

Re: Clustering & marshmallows

Postby Phillypatient » Thu Nov 28, 2019 6:43 pm

Good to know. I recently went to my GI doc after a couple of years of clustering and he mentioned that I might be somewhat constipated. After doing an X-ray he confirmed it. I started to drink Smooth Move tea every evening and it moved things along much faster. He mentioned that the force to evacuate the bowels actually comes from the large intestine and not the rectum as I had previously assumed. That explained why many times you feel a forceful movement even with no rectum. ( I had an LAR with coloanal anastomosis ) I suppose the theory is that the ileostomy makes the large intestine dormant and so it needs to relearn how to move things along.

I hope this helps anyone frustrated like I was.
Male 48, dx 10/16 rectal cancer t3n1m0
Chemorad Dec 16
Xelox Mar 17-Jul 17
Lar Sept 17
Reversal Dec 17


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