I've been fighting clustering from the get go & was really starting to get annoyed on how it kept infringing on my life. Did a bit of research and came upon comments of people with ileostomies using marshmallows to slow down output so they could change their bags. I remembered that from early on and figured - why not?
So I got a bag of SMALL marshmallows and pop four before and after a meal (or a cup of coffee) and I have not had a clustering episode since. I don't particularly like marshmallows, so the small ones are easy to eat. Also, 18 small marshmallows is 100 calories and when I think of all the extra carbs I've eaten over the past few years to absorb problem foods (veggies) 100 calories is nothing.
Hope this helps someone - better than meds.
Peace and Happy Thanksgiving
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
6/15 - HFS gone!