A freakin hernia now

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Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

A freakin hernia now

Postby Trying » Sun Nov 24, 2019 10:27 pm

Its been about 6 weeks since my emergency colostomy. I was alone and my son fell and was screaming. My first instinct was to pick him up. I now have a hard bulge under my stoma which looks exactly like a hernia. Any tips other than surgery to keep it from growing or maybe helping it go down a bit? Or is this wishful thinking. I feel like a building that keeps getting hit with a wrecking ball. One thing after another as it is for many of us.

Nicole
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

Punky44
Posts: 446
Joined: Mon Oct 01, 2018 4:29 pm

Re: A freakin hernia now

Postby Punky44 » Sun Nov 24, 2019 11:30 pm

I’m sorry :( You deserve a break.
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4
Latest update: 6/20–Clear CT; 9/22—CEA 2.4

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: A freakin hernia now

Postby Trying » Mon Nov 25, 2019 10:12 am

Thank you
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

Gravelyguy
Posts: 323
Joined: Thu Jul 05, 2018 6:03 pm

Re: A freakin hernia now

Postby Gravelyguy » Mon Nov 25, 2019 11:46 am

Trying,

I am so sorry. Hang in there.

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0
12/19/19 clear scans CEA 1.0 still NED!
6/17/20 clear scans CEA 1.1 still NED!

AmyG
Posts: 352
Joined: Tue Dec 25, 2018 8:08 pm

Re: A freakin hernia now

Postby AmyG » Mon Nov 25, 2019 12:07 pm

That's crap. Are you okay? Your son alright?
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: A freakin hernia now

Postby Trying » Mon Nov 25, 2019 3:23 pm

Yes we are ok. Thank you all. It just sucks.
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

boxhill
Posts: 608
Joined: Fri Apr 06, 2018 11:40 am

Re: A freakin hernia now

Postby boxhill » Mon Nov 25, 2019 3:33 pm

You should call your cancer center right away.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

galee
Posts: 23
Joined: Sat Aug 24, 2019 2:44 pm
Facebook Username: galeehardin@cox.net

Re: A freakin hernia now

Postby galee » Mon Nov 25, 2019 5:33 pm

Sending you an abundance of positive prayers. No advice to offer, just love & light. I am 9 weeks out from colon resection. I have a handicap son. It is so difficult to fight my natural instincts for his care and to rely on others.

Prayers for healing,
Lee
47 year old, Female
8/15/2019 Colonoscopy due to blood in bowels
8/20/2019 Pathology 3cm Adenocarcinoma
Recto-Sigmoid junction, 12 cm from anal verge
G2
MSS
BRAF, KRAS, NRAS Not Detected
CEA 1.8
9/23/2019 sigmoid & rectum colectomy plus left salpingo-oophorectomy, small intestine resection & appendectomy
9/30/2019 Pathology: T2N0M0, moderately differentiated adenocarcinoma (2.8cm), margins uninvolved

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: A freakin hernia now

Postby Trying » Mon Nov 25, 2019 10:12 pm

Thank you very much
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

del
Posts: 118
Joined: Thu Mar 03, 2016 11:21 pm
Location: Sydney, Australia

Re: A freakin hernia now

Postby del » Tue Nov 26, 2019 12:18 am

Sorry to hear that, I hope it is not painful. There are things you can do to try to avoid a hernia getting larger, like avoiding certain abdominal exercises, but unfortunately there's not really anything you can do to shrink a hernia. I had the same problem, a hernia right next to my ileostomy. When I had the ileostomy reversal surgery they just pushed the hernia back in and stitched it up, but about a year later it came back as a marble-sized bulge next to my scar. I then had a hernia repair surgery and a mesh was inserted and I haven't had any problems since. Hope you can get it sorted out!
Male, 33 @ dx, stage 1 RC (T1N0M0 0/29 LNs)
2016-02 - Cancerous polyp removed during colonscopy, 0.5 mm margin
2016-03 - ULAR & TME surgery, temp ileostomy
2016-04 - DVT, pulmonary embolism
2016-11 - Ileostomy reversal
2018-10 - Another DVT & PE

User avatar
CRguy
Posts: 10234
Joined: Sun Feb 10, 2008 6:00 pm

Re: A freakin hernia now

Postby CRguy » Tue Nov 26, 2019 1:34 am

Trying wrote:Its been about 6 weeks since my emergency colostomy. I was alone and my son fell and was screaming. My first instinct was to pick him up. I now have a hard bulge under my stoma which looks exactly like a hernia. Any tips other than surgery to keep it from growing or maybe helping it go down a bit? Or is this wishful thinking. I feel like a building that keeps getting hit with a wrecking ball. One thing after another as it is for many of us.
Nicole

Glad you and the little one are OK ... scary when our kids need us like that !

Checking in with Docs would be a good step just to assess IF it needs any more attention ???
"My first instinct was to pick him up." >>>>>> Damn straight !!!!! <<<<<<<<

BUTT ... another option, if mobility permits, would be to get yourself down onto the floor with him,
so you can hold/comfort him without the added "mechanical" stress on your body ???? just a thought if this happens again

I know the INSTINCT reflex. It caused me to rupture my quads tendon right off my patella :twisted: :twisted: :twisted:
and this is ME who has trained martial arts for decades, where we try to RE-train our instincts
... BUTT when loved ones are involved, I know ... they always come first

All the best to you and your son
You are a great Mom !

In Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: A freakin hernia now

Postby Trying » Tue Nov 26, 2019 10:02 am

Thank you very much :D
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020


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