Diarrhoea only at Night

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boxhill
Posts: 403
Joined: Fri Apr 06, 2018 11:40 am

Re: Diarrhoea only at Night

Postby boxhill » Fri Nov 22, 2019 9:20 pm

Psyllium is really quite tasteless. If it tastes like anything, it's probably wheat.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED
11/20/18 CT NED. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met? and 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda
9/10/19 CT stable

B in Canada
Posts: 23
Joined: Sun Dec 07, 2014 12:29 pm

Re: Diarrhoea only at Night

Postby B in Canada » Wed Nov 27, 2019 11:05 pm

Nocturnal diarrhea is one of the less common side-effects listed for Capecitabine (Xeloda). I had it and think I used Immodium to 'calm" it down when I did.
I hope he finds some relief to his problem.
Positive FIT test Spring 2013(intermittent blood=of course thought it was hemorrhoid) & finally got appt with colo-rectal surgeon Dec.2013 & then colonoscopy Aug. 2014
Sigmoid resection (laparoscopic) Nov. 2014 T3N0M0=colon 2A Female 53 yrs. old
Choice of to take Capecitabine(Xeloda) or not: did 2 rounds and then had to quit due to many side-effects(still have auto-immune/drug-induced arthritis problems)
Colonoscopy Fall 2015(few polyps), Jan 2017(couple polyps); all scans/CEA/monitoring good :D

Siti
Posts: 97
Joined: Thu Aug 01, 2019 10:58 am

Re: Diarrhoea only at Night

Postby Siti » Thu Nov 28, 2019 6:26 am

B in Canada wrote:Nocturnal diarrhea is one of the less common side-effects listed for Capecitabine (Xeloda). I had it and think I used Immodium to 'calm" it down when I did.
I hope he finds some relief to his problem.


Thank you! I am following everyone’s input —

1- Imodium but proactively, rather than reactively. One before each meal.
2- Buscopan in the morning and with Imodium right before bed.
3- trying to incorporate more soluble fiber and added chia seeds. I’ve also ordered psyllium husk which will arrive today.

He has another cycle tomorrow. I hope he goes through it with minimal side effects.
Wife of DH (54) DX on 5/7/19
CEA value: 1.2
T loc: Sigmoid
T type: Adenocarcinoma
T grade: G3
Pos LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 9
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!!

AlexandraZ
Posts: 105
Joined: Fri Aug 23, 2019 8:25 am

Re: Diarrhoea only at Night

Postby AlexandraZ » Thu Nov 28, 2019 2:25 pm

Sending you lots of good thoughts Siti! I know the feeling of dreading chemo and its side effects all too well.

Jesper has had cramping and diarrhea today too, three days after his first FOLFOX. Nothing like your husband has been going through, though. I gave him a glass of water with a teaspoon of psyllium husks in it and he said it helped. He is also taking Rick Simpson oil, which is helping him sleep. He slept 11 hours on his first chemo night, as opposed to his usual 3 hours on the first night. I'm happy for anything that helps him sleep!

Best wishes to you and your husband.
Boyfriend 28yo dx February 2019, CEA 70,480
Stage 4 CRC with multiple mets to liver & lungs
KRAS, NRAS, BRAF wild type, MSS
12x FOLFIRI + Vectibix
September 2019 CEA 210, 60% reduction in size, chemo break!


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