Question For All Those Who Have Had Illeostomy Reversal Surgery

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Joined: Thu Nov 01, 2018 6:10 pm

Question For All Those Who Have Had Illeostomy Reversal Surgery

Postby Deep » Sun Nov 17, 2019 2:24 pm

I am getting told that my colon is too narrow and I will need to have treatment with balloons during colonoscopies to fix it before my reconstructive surgery can be done. Anyone else go through this before surgery?
11/29/18 Diagnosed T3N1 Rectal Cancer (Age 39, Male, no family history)
01/02/19--02/7/19--- 25 rounds radiation/chemo (Capecitabine 2000 mg)
04/15/19 Surgery, temp ileostomy (Tumor Staged T2)
7/8/19-10/15/19 Chemo (8 Rounds) Folfox
11/12/19- Scan NED

Posts: 2478
Joined: Fri Jul 21, 2017 3:43 am

Re: Question For All Those Who Have Had Illeostomy Reversal Surgery

Postby NHMike » Sun Nov 17, 2019 8:30 pm

I have never heard of this procedure before. It sounds like the want to enlarge the large intestine before the reversal.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Posts: 40
Joined: Wed Jun 13, 2018 11:46 am

Re: Question For All Those Who Have Had Illeostomy Reversal Surgery

Postby tminor5 » Mon Nov 18, 2019 9:39 am

My husband did. If you read my signature you can see how many times he had to go in. He never had pain. They had to make him sleepy. He had a colostomy take down first and given an illeostomy because they were worried he’d scar and have issues with the connection. It’s a good thing they did because his connection ended up being only a 1mm opening. That’s what they had to stretch with the balloon.

They took the staples out from surgery during one, because it was causing scarring and narrowing. The 2nd to last they stretched it then shot it with steroids to help keep it open. They almost put a stint in to help but didn’t have to. They don’t like to do that to anyone fully connected, but will sometimes with people who are not.

He is now 3 weeks from his illeostomy take down.

His whole colon is 15mm in diameter. We were told they usually average 30mm. He is still on a low fiber diet. He goes back for another colonoscopy Dec 16 so the GI Dr can make sure everything looks good. But he did warn us he may be on a low fiber diet forever because of his narrow colon.
DH DX at 46  pT4a,pN1a CEA 1.6
5/25/18 ER bowel obstruction
5/26/18 Colonoscopy couldn't insert stint
5/27/18 Surgery removed 18", not seen on any near by organs, colostomy due to infection
6/25/18 1st FOLFOX (12 cycles)
11/26/18 Last chemo
12/17/18 Colonoscopy clear
3/29/19 Colostomy takedown (temp illeo because of scaring)
5/23/19 Scan (sm node lung believe scar tissue)
6/20-7/25-8/9-8/20-9/5-9/26 Colon stretch for illeo takedown
10/3/19 Scan (node same)
10/25/19 Ileo takedown

Posts: 317
Joined: Thu Jul 05, 2018 6:03 pm

Re: Question For All Those Who Have Had Illeostomy Reversal Surgery

Postby Gravelyguy » Mon Nov 18, 2019 10:21 am

I had the balloon stretching done during take down. I was under so don't remember it! :roll: I am doing pretty well post take down but my stools are quite narrow. After my 1 year colonoscopy my stools were normal size for a couple of days so I think it does stretch things out but for me it didn't have a lasting impact.

Hope this helps and good luck to your husband.

6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0
12/19/19 clear scans CEA 1.0 still NED!
6/17/20 clear scans CEA 1.1 still NED!

Posts: 362
Joined: Sat Nov 04, 2017 11:08 am

Re: Question For All Those Who Have Had Illeostomy Reversal Surgery

Postby heiders33 » Tue Nov 19, 2019 6:19 am

I wonder if this would have helped me before my reversal. My connection point is too narrow for a regular colonoscopy so I have to do endoscopy and CT colonography to see the whole colon. However, that’s my only real issue - I’ve never had any blockages.
37 year-old female
May 2017: Dx rectal cancer T3N2M0
6/17: 28 days chemorad
9/17: LAR/loop ileostomy
10/17 - 2/18: XELOX six rounds
3/18: reversal
5/18: CT liver spot, blood counts normal
8/18: Abnormal PET, CEA 2.4
9/18: liver resection/HAI pump
10/18: Clear CT/sigmoidoscopy
10/18 - 4/19: 6MO FUDR/5FU
7/19 - Clear CT
9/19 - Clear colonoscopy/colonography
10/19 - Clear CT
11/19 - CEA 9.8, PET abnormal, confirmed local recurrence

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